Mission
INFORMATION REGARDING THE FOUNDATION'S PROGRAMS CAN BE OBTAINED AT WWW.EVERYLIFEFOUNDATION.ORG.
Public Charity
EVERYLIFE FOUNDATION FOR RARE DISEASES
Based in WASHINGTON, DC, EVERYLIFE FOUNDATION FOR RARE DISEASES operates as a Public Charity. The organization reported $7.0M in revenue, $6.8M in expenses, $6.2M in total assets for fiscal year 2024. Imperigo tracks 51 reported grant relationships connected to this organization totaling approximately $3.7M.
EIN: 264614274
WASHINGTON, DC
Latest filing: 2024
Total Revenue$7.0M
Total Expenses$6.8M
Total Assets$6.2M
Grant Records51
Funding Total$3.7M
Filing Years2020–2024
Sample Grants Received
PROVIDE GENERAL OPERATING SUPPORT
$438,867
SCHOLARSHIPS
$210,711
GENERAL CONTRIBUTION
$20,000
GENERAL SUPPORT
$17,977
For grant recipient's exempt purposes
$13,500
Showing up to 5 of 51 total records — full history available with membership.
Officers & Directors
Director
Abbey Hauser
Director
Amrit Ray - Until 224
Policy & Advocacy
Anne Kennedy
Director
Cristina Casanova Might - Until 122
Sr Dir of Develop
Edward Brasfield
Vice Chair
Frank Sasinowski
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $7.0M | $6.8M | $6.2M |
| 2023 | $6.8M | $6.1M | $5.8M |
| 2022 | $5.8M | $5.8M | $4.5M |
| 2021 | $5.5M | $5.1M | $4.6M |
| 2020 | $4.4M | $4.0M | $4.3M |
Between 2020 and 2024, reported annual revenue grew from $4.4M to $7.0M (+59%), with total assets most recently reported at $6.2M.
Interactive year-over-year charts and full filing details available with membership.