Mission
LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.
Public Charity
AMYOTROPHIC LATERAL SCLEROSIS ASSN
AMYOTROPHIC LATERAL SCLEROSIS ASSN is a Public Charity headquartered in ARLINGTON, VA. Financial data from the 2025 filing: $20.9M revenue, $26.0M expenses, $100.4M total assets. 412 publicly reported grants to this organization, totaling roughly $30.9M, appear in IRS filings.
EIN: 133271855
ARLINGTON, VA
Nerve, Muscle & Bone Diseases
NTEE: G50
Latest filing: 2025
Total Revenue$20.9M
Total Expenses$26.0M
Total Assets$100.4M
Grant Records412
Funding Total$30.9M
Filing Years2021–2025
Where $100 goes at Amyotrophic Lateral Sclerosis Assn
How Amyotrophic Lateral Sclerosis Assn divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$71
Programs
the work itself
$9
Management
running the organization
$20
Fundraising
raising the next dollar
Inside the $71 for programs
$45
Patient and community services
$13
Research programs
$13
The als association develops awareness and understanding of als and the work of the association among the general public, healthcare professionals, the scientific community and elected and other…
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
TO PROVIDE FUNDS TO NATIONAL ALS ORGANIZATION FOR USE IN ITS CONTINUING RESEARCH ON FIGHTING THE DISEASE
$205,100
GENERAL SUPPORT
$167,686
General Support
$151,500
CHARITABLE GIVING
$52,024
GENERAL SUPPORT
$20,154
Showing up to 5 of 412 total records — full history available with membership.
Officers & Directors
TRUSTEE
Annette Bowman
TRUSTEE
Bernie Zipprich
CHIEF MARKETING & COMMUNICATIONS OFFICER
Brian Frederick
PRESIDENT AND CEO
Calaneet Balas
TRUSTEE (THRU 07/24)
Christi L Kolarcik Phd
TRUSTEE
Chris Tonniges
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $20.9M | $26.0M | $100.4M |
| 2024 | $126.5M | $98.8M | $127.9M |
| 2023 | $55.6M | $84.2M | $94.4M |
| 2022 | $39.8M | $44.9M | $98.3M |
| 2021 | $35.1M | $38.4M | $100.3M |
Between 2021 and 2025, reported annual revenue declined from $35.1M to $20.9M (-40%), with total assets most recently reported at $100.4M.
Interactive year-over-year charts and full filing details available with membership.