Mission
THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.
Public Charity
AMYOTROPHIC LATERAL SCLEROSIS ASSN
AMYOTROPHIC LATERAL SCLEROSIS ASSN is a Public Charity headquartered in ARLINGTON, VA. Financial data from the 2025 filing: $68.6M revenue, $82.2M expenses, $107.2M total assets. 393 publicly reported grants to this organization, totaling roughly $29.8M, appear in IRS filings.
EIN: 133271855
ARLINGTON, VA
Latest filing: 2025
Total Revenue$68.6M
Total Expenses$82.2M
Total Assets$107.2M
Grant Records393
Funding Total$29.8M
Filing Years2021–2025
Sample Grants Received
TO PROVIDE FUNDS TO NATIONAL ALS ORGANIZATION FOR USE IN ITS CONTINUING RESEARCH ON FIGHTING THE DISEASE
$205,100
GENERAL SUPPORT
$2,121,406
For grant recipient's exempt purposes
$1,975,478
$528,706
GENERAL SUPPORT
$485,745
Showing up to 5 of 393 total records — full history available with membership.
Officers & Directors
TRUSTEE
Annette Bowman
TRUSTEE
Bernie Zipprich
CHIEF MARKETING & COMMUNICATIONS OFFICER
Brian Frederick
PRESIDENT AND CEO
Calaneet Balas
TRUSTEE (THRU 07/24)
Christi L Kolarcik Phd
TRUSTEE
Chris Tonniges
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $68.6M | $82.2M | $107.2M |
| 2024 | $126.5M | $98.8M | $127.9M |
| 2023 | $55.6M | $84.2M | $94.4M |
| 2022 | $39.8M | $44.9M | $98.3M |
| 2021 | $35.1M | $38.4M | $100.3M |
Between 2021 and 2025, reported annual revenue grew from $35.1M to $68.6M (+95%), with total assets most recently reported at $107.2M.
Interactive year-over-year charts and full filing details available with membership.