Mission
HAYSTACK PROJECT BRINGS TOGETHER STAKEHOLDERS CONNECTED TO RARE AND ULTRA RARE MEDICAL CONDITIONS TO EDUCATE THEM AND ASSIST THEM WITH THEIR SELF ADVOCACY EFFORTS.
Public Charity
HAYSTACK PROJECT INC
Based in SEVERNA PARK, MD, HAYSTACK PROJECT INC operates as a Public Charity. The organization reported $448K in revenue, $522K in expenses, $328K in total assets for fiscal year 2025. Imperigo tracks 1 reported grant relationships connected to this organization totaling approximately $15K.
EIN: 833367375
SEVERNA PARK, MD
Alliances & Advocacy
NTEE: G01
Latest filing: 2025
Total Revenue$448K
Total Expenses$522K
Total Assets$328K
Grant Records1
Funding Total$15K
Filing Years2021–2025
Where $100 goes at Haystack Project Inc
How Haystack Project Inc divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
$87
Programs
the work itself
$13
Management
running the organization
$0
Fundraising
none reported
No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.
Inside the $87 for programs
$87
The organization brings together patient organizations representing patients suffering from or caring for patients with extremely rare diseases
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL CONTRIBUTION
$15,000
Showing up to 5 of 1 total records — full history available with membership.
Officers & Directors
SECRETARY
Chevese Turner
DIRECTOR
Christina Nyquist
DIRECTOR
Janet Woodcock
DIRECTOR
Jim Caro
CEO
Kara Berasi
PATIENT REP.
Kristen Wheeden
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $448K | $522K | $328K |
| 2024 | $759K | $526K | $402K |
| 2023 | $227K | $435K | $175K |
| 2022 | $476K | $381K | $383K |
| 2021 | $483K | $364K | $287K |
Between 2021 and 2025, reported annual revenue declined from $483K to $448K (-7%), with total assets most recently reported at $328K.
Interactive year-over-year charts and full filing details available with membership.