Public Charity

HEREDITARY NEUROPATHY FOUNDATION INC

HEREDITARY NEUROPATHY FOUNDATION INC is a Public Charity headquartered in NEW YORK, NY. Financial data from the 2025 filing: $545K revenue, $895K expenses, $1.0M total assets. 26 publicly reported grants to this organization, totaling roughly $671K, appear in IRS filings.

EIN: 134137654 NEW YORK, NY Fund Raising & Fund Distribution NTEE: H12 Latest filing: 2025
Total Revenue$545K
Total Expenses$895K
Total Assets$1.0M
Grant Records26
Funding Total$671K
Filing Years2021–2025

Mission

HNF, INC., A NON-PROFIT DEDICATED TO SUPPORTING PROJECTS THROUGH THE THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD)PROGRAM, A COLLABORATIVE EFFORT WITH ACADEMIA, GOVERNMENT AND INDUSTRY, TO DEVELOP TREATMENTS FOR CMT. CURRENTLY TRIAD INVOLVES MANY GROUPS THAT SPAN THE DRUG DISCOVERY, DRUG DEVELOPMENT, AND DIAGNOSTICS CONTINUUM. EDUCATION AND SUPPORT OF THE CMT COMMUNITY TO IMPROVE QUALITY OF LIFE IS ALSO A KEY COMPONENT OF HNF'S MISSION.

Where $100 goes at Hereditary Neuropathy Foundation Inc

How Hereditary Neuropathy Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$87 Programs the work itself
$7 Management running the organization
$6 Fundraising raising the next dollar

Inside the $87 for programs

$87
Research programs are as follows
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

FOUNDER AND CHIEF EXECUTIV Allison Moore
SECRETARY Brooke Warren
EXECUTIVE DIRECTOR Courtney Hollett
BOARD MEMBER Dennis Sullivan
BOARD MEMBER Dominic Hadeed
BOARD MEMBER Gretchen Cappiello

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$659,721 24 grants
Health & Medicine
$11,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $545K $895K $1.0M
2024 $655K $730K $1.5M
2023 $544K $671K $1.5M
2022 $1.3M $759K $1.6M
2021 $637K $679K $1.3M

Between 2021 and 2025, reported annual revenue declined from $637K to $545K (-14%), with total assets most recently reported at $1.0M.

Interactive year-over-year charts and full filing details available with membership.

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