Public Charity

GLOBAL GENES

Based in WASHINGTON, DC, GLOBAL GENES operates as a Public Charity. The organization reported $7.1M in revenue, $7.4M in expenses, $1.5M in total assets for fiscal year 2024. Imperigo tracks 23 reported grant relationships connected to this organization totaling approximately $3.8M.

EIN: 263331487 WASHINGTON, DC Latest filing: 2024
Total Revenue$7.1M
Total Expenses$7.4M
Total Assets$1.5M
Grant Records23
Funding Total$3.8M
Filing Years2019–2024

Mission

GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.

Officers & Directors

DIRECTOR Alvin Shih
DIRECTOR Betsy Bogard
DIRECTOR Caroline Loewy
CEO Charlene Son Rigby
SECRETARY Christina Hartman
DIRECTOR, PROGRAM OPERATIONS Chwenwoan Kuan

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$3,149,480 4 grants
Unspecified
$192,927 2 grants
Data Collection & Biorepository
$100,000 1 grant
MEDICAL / PUBLIC SERVICES
$100,000 1 grant
Sponsorship
$75,000 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $7.1M $7.4M $1.5M
2023 $8.5M $8.6M $2.1M
2022 $5.6M $7.7M $2.3M
2020 $5.6M $5.2M $3.1M
2019 $7.0M $6.5M $2.9M

Between 2019 and 2024, reported annual revenue grew from $7.0M to $7.1M (+2%), with total assets most recently reported at $1.5M.

Interactive year-over-year charts and full filing details available with membership.

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