Public Charity

flok Health FKA NATIONAL PKU NEWS

flok Health FKA NATIONAL PKU NEWS is a nonprofit organization categorized as Public Charity based in MONTCLAIR, NJ. Its most recent IRS filing (2024) reports revenue of $1.8M, expenses of $1.4M, total assets of $1.5M. Imperigo tracks 27 reported grant relationships connected to this organization totaling approximately $3.9M.

EIN: 943098601 MONTCLAIR, NJ Latest filing: 2024
Total Revenue$1.8M
Total Expenses$1.4M
Total Assets$1.5M
Grant Records27
Funding Total$3.9M
Filing Years2020–2024

Mission

flok Health (the Organization), formerly National PKU News, is a nonprofit 501(c)(3) organization supporting individuals and families affected by inherited disorders of protein metabolism, including Phenylketonuria (PKU), Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Tyrosinemia, Organic Acidemias, and Urea Cycle Disorders (UCDs). These rare genetic conditions disrupt the bodys ability to process protein, which can lead to serious neurological and physical harmincluding developmental delays, seizures, coma, and deathif not carefully managed through lifelong treatment.

Where $100 goes at flok Health FKA NATIONAL PKU NEWS

How flok Health FKA NATIONAL PKU NEWS divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$85 Programs the work itself
$11 Management running the organization
$4 Fundraising raising the next dollar

Inside the $85 for programs

$52
Daily Care
61% of program spending
$30
Community
35% of program spending
$3
Research
4% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Board Member Adrian Alan Mays
Board Member Ameya Bhatawdekar
Board Member Brenda Winiarski
Board Member Brittany Murray
Board Member Daelyn Richards
BOARD MEMBER Erin Macleod

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$2,637,624 19 grants
Health & Medicine
$912,180 5 grants
Research & Policy
$400,137 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $1.8M $1.4M $1.5M
2023 $799K $747K $993K
2022 $844K $290K $1.3M
2021 $697K $294K $697K
2020 $221K $255K $279K

Between 2020 and 2024, reported annual revenue grew from $221K to $1.8M (+701%), with total assets most recently reported at $1.5M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for flok Health FKA NATIONAL PKU NEWS

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