Public Charity

flok Health FKA NATIONAL PKU NEWS

flok Health FKA NATIONAL PKU NEWS is a nonprofit organization categorized as Public Charity based in MONTCLAIR, NJ. Its most recent IRS filing (2024) reports revenue of $1.8M, expenses of $1.4M, total assets of $1.5M. Imperigo tracks 22 reported grant relationships connected to this organization totaling approximately $2.2M.

EIN: 943098601 MONTCLAIR, NJ Latest filing: 2024
Total Revenue$1.8M
Total Expenses$1.4M
Total Assets$1.5M
Grant Records22
Funding Total$2.2M
Filing Years2020–2024

Mission

flok Health (the Organization), formerly National PKU News, is a nonprofit 501(c)(3) organization supporting individuals and families affected by inherited disorders of protein metabolism, including Phenylketonuria (PKU), Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Tyrosinemia, Organic Acidemias, and Urea Cycle Disorders (UCDs). These rare genetic conditions disrupt the bodys ability to process protein, which can lead to serious neurological and physical harmincluding developmental delays, seizures, coma, and deathif not carefully managed through lifelong treatment.

Officers & Directors

Board Member Adrian Alan Mays
Board Member Ameya Bhatawdekar
Board Member Brenda Winiarski
Board Member Brittany Murray
Board Member Daelyn Richards
BOARD MEMBER Erin Macleod

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$800,000 1 grant
FOR RECIPIENT'S EXEMPT PURPOSE
$536,367 3 grants
fostering community and supporting research
$307,754 1 grant
For grant recipient's exempt purposes
$207,850 5 grants
For recipient's exempt purpose
$102,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $1.8M $1.4M $1.5M
2023 $799K $747K $993K
2022 $844K $290K $1.3M
2021 $697K $294K $697K
2020 $221K $255K $279K

Between 2020 and 2024, reported annual revenue grew from $221K to $1.8M (+701%), with total assets most recently reported at $1.5M.

Interactive year-over-year charts and full filing details available with membership.

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