Mission
The mission of the PKU Hope Foundation is to improve the quality of life for those with PKU by fostering community influencing and supporting research treatment therapies and easing the burden of managing the diet.
Public Charity
PKU HOPE FOUNDATION
PKU HOPE FOUNDATION, of LEESBURG, VA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $661K in revenue, $310K in expenses, $1.3M in total assets. 2 publicly reported grants to this organization, totaling roughly $1.5M, appear in IRS filings.
EIN: 932255729
LEESBURG, VA
Fund Raising & Fund Distribution
NTEE: H12
Latest filing: 2025
Total Revenue$661K
Total Expenses$310K
Total Assets$1.3M
Grant Records2
Funding Total$1.5M
Filing Years2023–2025
Where $100 goes at Pku Hope Foundation
How Pku Hope Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 3 years.
$89
Programs
the work itself
$3
Management
running the organization
$8
Fundraising
raising the next dollar
Inside the $89 for programs
$47
Influencing and supporting research treatment therapies for the rare disease community is crucial to help accelerate the development of effective treatments and therapies tailored to the specific needs…
$21
Fostering community for a rare disease provides a support network for individuals and families facing similar challenges facilities information sharing and resources raises awareness about the disease promotes…
$21
Easing the burden of managing the restrictive phenylketonuria diet is essential to improve the quality of life for individuals affected by this condition
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
To support PKU research and education/Creighton Farms Invitational.
$732,000
To support PKU research and education/Creighton Farms Invitational.
$800,000
Showing up to 5 of 2 total records — full history available with membership.
Officers & Directors
BOARD PRESIDENT
Jerry Elkins
EXEC DIRECTOR BOARD VP TREASURER
Jill Elkins
BOARD SECRETARY
Susan Anderson
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $661K | $310K | $1.3M |
| 2024 | $704K | $502K | $1.1M |
| 2023 | $818K | $91K | $807K |
Between 2023 and 2025, reported annual revenue declined from $818K to $661K (-19%), with total assets most recently reported at $1.3M.
Interactive year-over-year charts and full filing details available with membership.