Mission
Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare and orphan diseases by contributing to the advancement in research and development.
Public Charity
FOUNDATION FOR RARE DISEASE RESEARCH INC
FOUNDATION FOR RARE DISEASE RESEARCH INC is a nonprofit organization categorized as Public Charity based in SILVER SPRING, MD. Its most recent IRS filing (2025) reports revenue of $339K, expenses of $104K, total assets of $2.4M. Imperigo tracks 2 reported grant relationships connected to this organization totaling approximately $989K.
EIN: 920534021
SILVER SPRING, MD
Medical Disciplines Research
NTEE: H90
Latest filing: 2025
Total Revenue$339K
Total Expenses$104K
Total Assets$2.4M
Grant Records2
Funding Total$989K
Filing Years2022–2025
Where $100 goes at Foundation for Rare Disease Research Inc
How Foundation for Rare Disease Research Inc divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.
$99
Programs
the work itself
$1
Management
running the organization
$0
Fundraising
none reported
No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.
Inside the $99 for programs
$99
The organization conducts research on rare diseases, including hereditary angioedema
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
For grant recipient's exempt purposes
$20,000
For grant recipient's exempt purposes
$969,378
Showing up to 5 of 2 total records — full history available with membership.
Officers & Directors
President
Huamin Li
Secretary
Joseph Chiao
Treasurer
Juan Yu
Vice President
Lili Wan
Vice President
Shaobin Hou
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $339K | $104K | $2.4M |
| 2024 | $669K | $1.5M | $2.1M |
| 2023 | $1.3M | $2K | $3.0M |
| 2022 | $1.7M | — | $1.7M |
Between 2022 and 2025, reported annual revenue declined from $1.7M to $339K (-80%), with total assets most recently reported at $2.4M.
Interactive year-over-year charts and full filing details available with membership.