Public Charity

THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC

THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC is a nonprofit organization categorized as Public Charity based in BETHESDA, MD. Its most recent IRS filing (2024) reports revenue of $2.3M, expenses of $296K, total assets of $2.2M. Imperigo tracks 4 reported grant relationships connected to this organization totaling approximately $2.1M.

EIN: 844857909 BETHESDA, MD Medical Disciplines Research NTEE: H90 Latest filing: 2024
Total Revenue$2.3M
Total Expenses$296K
Total Assets$2.2M
Grant Records4
Funding Total$2.1M
Filing Years2021–2024

Mission

TO PROMOTE AND CARRY OUT RESEARCH, AND PROMOTE EDUCATIONAL ACTIVITIES, REGARDING PORPHYRIAS AND HEME BIOSYNTHESIS THROUGH DEVELOPMENT OF BEST PRACTICES, RESEARCH SUPPORT, AND EDUCATION.

Where $100 goes at The American Porphyrias Expert Collaborative Inc

How The American Porphyrias Expert Collaborative Inc divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.

$74 Programs the work itself
$22 Management running the organization
$4 Fundraising raising the next dollar

Inside the $74 for programs

$37
The American Porphyrias Expert Collaborative (apex) advanced the area of research support by providing grants through the next generation (nextgen) initiative, which seeks to educate and train the…
50% of program spending
$37
Apex advanced the area of education by continuing a fiscal sponsorship agreement with the united porphyrias association (upa) to support the establishment of upa as a patient advocacy…
About 50% (cost not reported)
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Brendan Mcguire
Director Bruce Wang Md
DIRECTOR Herbert Bonkovsky
VICE PRESIDENT John Phillips
DIRECTOR Karl Anderson
SECRETARY-TREAS Kristen Wheeden

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$1,084,500 3 grants
Education
$1,000,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $2.3M $296K $2.2M
2023 $84K $77K $233K
2022 $304K $228K $227K
2021 $172K $48K $151K

Between 2021 and 2024, reported annual revenue grew from $172K to $2.3M (+1238%), with total assets most recently reported at $2.2M.

Interactive year-over-year charts and full filing details available with membership.

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