Mission
TO ACCELERATE PROGRESS TOWARD A CURE FOR LEBER HEREDITARY OPTIC NEUROPATHY (LHON) WHILE IMPROVING THE LIVES OF PEOPLE LIVING WITH LHON.
Public Charity
LHON COLLECTIVE
LHON COLLECTIVE is a nonprofit organization categorized as Public Charity based in SAN DIEGO, CA. Its most recent IRS filing (2025) reports revenue of $336K, expenses of $181K, total assets of $260K. Imperigo tracks 6 reported grant relationships connected to this organization totaling approximately $59K.
EIN: 882257719
SAN DIEGO, CA
Specifically Named Diseases
NTEE: G80
Latest filing: 2025
Total Revenue$336K
Total Expenses$181K
Total Assets$260K
Grant Records6
Funding Total$59K
Filing Years2023–2025
Where $100 goes at Lhon Collective
How Lhon Collective divides every $100 it spends, from its own Form 990 filings, averaged across 3 years.
$99
Programs
the work itself
$1
Management
running the organization
$0
Fundraising
none reported
No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.
Inside the $99 for programs
$70
Lhon Collective worked with the milken foundation sparc to create an ongoing research in progress seminar series for researchers to discuss new and innovative scientific approaches to this…
$22
Lhon Collective hosted an lhon conference as a part of the overall patient conference held with the united mitochondrial disease foundation
$4
In partnership with carlisi creative, Lhon Collective developed audio-described, accessible educational video materials to scientifically explain lhon
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
MENTAL HEALTH IMPACT GRANT
$9,000
GENERAL SUPPORT
$5,060
GENERAL SUPPORT
$5,060
$20,000
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
$20,000
Showing up to 5 of 6 total records — full history available with membership.
Officers & Directors
CFO
Alison Poincenot
SECRETARY
Chris Marsh
CEO
Malinda Marsh
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $336K | $181K | $260K |
| 2024 | $219K | $110K | $117K |
| 2023 | $76K | $70K | $6K |
Between 2023 and 2025, reported annual revenue grew from $76K to $336K (+340%), with total assets most recently reported at $260K.
Interactive year-over-year charts and full filing details available with membership.