Public Charity

FAM177A1 Research Fund

FAM177A1 Research Fund is a Public Charity headquartered in Mercer Island, WA. Financial data from the 2025 filing: $334K revenue, $272K expenses, $327K total assets. 13 publicly reported grants to this organization, totaling roughly $175K, appear in IRS filings.

EIN: 873607948 Mercer Island, WA Birth Defects & Genetic Diseases Research NTEE: H20 Latest filing: 2025
Total Revenue$334K
Total Expenses$272K
Total Assets$327K
Grant Records13
Funding Total$175K
Filing Years2021–2025

Mission

The FAM177A1 Research Fund is a family-led patient advocacy organization dedicated to improving the lives of everyone impacted by FAM177A1 Disorder. We provide hope to affected families while focusing the global research community on FAM177A1 to develop life-transformative treatm

Where $100 goes at FAM177A1 Research Fund

How FAM177A1 Research Fund divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.

$77 Programs the work itself
$3 Management running the organization
$20 Fundraising raising the next dollar

Inside the $77 for programs

$35
Patient Advocacy & Data
45% of program spending
$21
Breakthrough Research & Grants
28% of program spending
$21
Fundraising & Awareness
About 27% (cost not reported)
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Treasurer Beth Sampson
Vice President Doug Hawkins
Founder & President Jill Hawkins
Secretary Michelle Bice

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$97,975 8 grants
Human & Social Services
$50,000 2 grants
Research & Policy
$13,500 1 grant
Health & Medicine
$13,200 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $334K $272K $327K
2024 $306K $81K $266K
2023 $129K $103K $41K
2021 — — —

Between 2023 and 2025, reported annual revenue grew from $129K to $334K (+158%), with total assets most recently reported at $327K.

Interactive year-over-year charts and full filing details available with membership.

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