Mission
OUR MISSION IS TO UNITE THE GLOBAL LEIGH SYNDROME COMMUNITY TO ACCELERATE PATIENT-CENTERED RESEARCH, TREATMENTS, AND CURES BY FUNDING RESEARCH AND SUPPORTING COLLABORATION IN LEIGH SYNDROME AND MITOCHONDRIAL DISEASE.
Public Charity
CURE MITO FOUNDATION
CURE MITO FOUNDATION is a Public Charity headquartered in MCKINNEY, TX. Financial data from the 2025 filing: $479K revenue, $502K expenses, $1.1M total assets. IRS filings disclose 11 grants awarded by this foundation, totaling roughly $799K.
EIN: 824665767
MCKINNEY, TX
Private Independent Foundations
NTEE: T22
Latest filing: 2025
Total Revenue$479K
Total Expenses$502K
Total Assets$1.1M
Grants Given11
Grant Total$799K
Filing Years2021–2025
Where $100 goes at Cure Mito Foundation
How Cure Mito Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$87
Programs
the work itself
$11
Management
running the organization
$2
Fundraising
raising the next dollar
Inside the $87 for programs
$82
Research funding to advance treatments for leigh syndrome and mitochondrial disease
$5
Education, outreach, and engagement activities designed to support individuals and families affected by leigh syndrome and to elevate patient and caregiver perspectives in research and care
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Before you apply to Cure Mito Foundation
Who to contact, what to include, deadlines, typical grant size and geographic focus are available with membership.
Sample Grants Given
UT SOUTHWESTERN
RESEARCH INTIATIVE
$218,556
WASHINTON UNIVERSITY
RESEARCH
$70,000
RESEARCH
$34,000
RESEARCH INITIATIVE
$33,250
RESEARCH INITIATIVE
$17,651
Showing up to 5 of 11 total records — full history available with membership.
Officers & Directors
DIRECTOR
Bill Suzor
SECRETARY
Courtney Boggs
TREASURER
Doug Woleben
BOARD MEMBER EMERITUS
Jacob Boggs
EXECUTIVE DIRECTOR
Kasey Woleben
VICE PRESIDENT
Sophia Zilber
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $479K | $502K | $1.1M |
| 2024 | $674K | $335K | $1.1M |
| 2023 | $560K | $201K | $750K |
| 2022 | $481K | $216K | $392K |
| 2021 | $49K | $52K | $127K |
Between 2021 and 2025, reported annual revenue grew from $49K to $479K (+871%), with total assets most recently reported at $1.1M.
Interactive year-over-year charts and full filing details available with membership.
Grant Geography
Grants from this foundation were reported to recipients in AZ, CA, NV, NY, TX, WA.
AZCANVNYTXWA
Full geographic grant map with state-by-state breakdown available with membership.