Small Public Charity

UNDIAGNOSED DISEASES NETWORK FOUNDATION

UNDIAGNOSED DISEASES NETWORK FOUNDATION, of WASHINGTON, DC, is a Small Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $120K in revenue, $1.1M in expenses, $411K in total assets. 4 publicly reported grants to this organization, totaling roughly $2.6M, appear in IRS filings.

EIN: 873474254 WASHINGTON, DC Fund Raising & Fund Distribution NTEE: G12 Latest filing: 2025
Total Revenue$120K
Total Expenses$1.1M
Total Assets$411K
Grant Records4
Funding Total$2.6M
Filing Years2021–2025

Mission

THE UDNF'S MISSION IS TO IMPROVE ACCESS TO DIAGNOSIS, RESEARCH, AND CARE FOR ALL WITH UNDIAGNOSED AND ULTRA-RARE CONDITIONS. WE AIM TO FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, AND SCIENTISTS TO ENHANCE THE QUALITY OF LIFE OF UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS TO EQUITY AND ACCESS IN HEALTHCARE; SETTING STANDARDS FOR PATIENT MANAGEMENT; AND BRIDGING DIAGNOSIS AND THERAPEUTICS AS WELL AS RESEARCH AND CLINICAL CARE IN UNDIAGNOSED AND ULTRA-RARE DISEASES.

Officers & Directors

CEO Danielle Carnival
BOARD MEMBER Effie Parks
VICE CHAIR/CHAIR F Sessions Cole
BOARD MEMBER/VICE CHAIR Gerald Sweeney
SECRETARY Kelly Cerventes
BOARD MEMBER Liliana Fernandez

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$2,500,000 1 grant
HEALTH
$38,000 2 grants
GENERAL SUPPORT
$13,047 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $120K $1.1M $411K
2024 $329K $1.4M $1.4M
2023 $2.6M $218K $2.4M
2021

Between 2023 and 2025, reported annual revenue declined from $2.6M to $120K (-95%), with total assets most recently reported at $411K.

Interactive year-over-year charts and full filing details available with membership.

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