Mission
To promote awareness, research, and support for a rare genetic syndrome discovered in 2016.EBF3-related HADDS generally affects the nervous system, muscle tone, speech, and general development.
Small Public Charity
EBF3 HADDS Foundation
EBF3 HADDS Foundation, of Saint Louis, MO, is a Small Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $61K in revenue, $85K in expenses, $94K in total assets. 4 publicly reported grants to this organization, totaling roughly $51K, appear in IRS filings.
EIN: 832757964
Saint Louis, MO
Latest filing: 2024
Total Revenue$61K
Total Expenses$85K
Total Assets$94K
Grant Records4
Funding Total$51K
Filing Years2020–2024
Sample Grants Received
General Support
$15,935
UNRESTRICTED
$7,848
General Support
$17,091
Unrestricted
$10,532
Showing up to 5 of 4 total records — full history available with membership.
Officers & Directors
Secretary
Chris Headings
Treasurer-Outgoing
David Schindler
Vice President
Fernanda Tuoso
Board Member
Hannah Childers
Vice-President-Outgoing
Ivette Matias-Sepersaude
Board Member
James Amos
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $61K | $85K | $94K |
| 2023 | $61K | $41K | $119K |
| 2022 | $54K | $66K | $99K |
| 2021 | $43K | $36K | $111K |
| 2020 | $83K | $10K | $102K |
Between 2020 and 2024, reported annual revenue declined from $83K to $61K (-27%), with total assets most recently reported at $94K.
Interactive year-over-year charts and full filing details available with membership.