Mission
SEE SCHEDULE O
Public Charity
FABRY SUPPORT & INFORMATION GROUP
FABRY SUPPORT & INFORMATION GROUP is a nonprofit organization categorized as Public Charity based in CONCORDIA, MO. Its most recent IRS filing (2025) reports revenue of $571K, expenses of $554K, total assets of $795K. Imperigo tracks 2 reported grant relationships connected to this organization totaling approximately $20K.
EIN: 431890134
CONCORDIA, MO
Birth Defects & Genetic Diseases
NTEE: G20
Latest filing: 2025
Total Revenue$571K
Total Expenses$554K
Total Assets$795K
Grant Records2
Funding Total$20K
Filing Years2020–2025
Where $100 goes at Fabry Support & Information Group
How Fabry Support & Information Group divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$64
Programs
the work itself
$33
Management
running the organization
$3
Fundraising
raising the next dollar
Inside the $64 for programs
$43
PATIENT MEETINGS-FSIG brings educational and support meetings directly to Fabry patients and families, many of whom face challenges traveling long distances
$21
EXPERT FABRY CONFERENCE FEFC-FSIG organizes the annual Expert Fabry Conference, offering patients, families, and professionals the opportunity to learn about the latest research and treatment options
<$1
WEBSITE EDUCATION
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
TO SUPPORT FABRY NEWBORN SCREENING INITIATIVES AS A MEMBER OF THE LYSOSOMAL STORAGE DISEASE COALITION.
$10,000
NEWBORN SCREENING SUPPORT VIA TESTING FOR TOTS, AND ORGANIZATION WITHIN FSIG, AND VIA THE LYSOSOMAL STORAGE DISEASE (LSD) COALITION.
$10,000
Showing up to 5 of 2 total records — full history available with membership.
Officers & Directors
PRESIDENT
Amy Young
BOARD MEMBER / SECRETARY
Anita Brandt Burgoyne
TREASURER
Debra Johnson
BOARD MEMBER
Freddy Battah
FOUNDER
Jack Johnson
VICE PRESIDENT
Jason Frett
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $571K | $554K | $795K |
| 2024 | $645K | $608K | $759K |
| 2023 | $444K | $541K | $737K |
| 2022 | $680K | $505K | $805K |
| 2020 | $363K | $273K | $456K |
Between 2020 and 2025, reported annual revenue grew from $363K to $571K (+57%), with total assets most recently reported at $795K.
Interactive year-over-year charts and full filing details available with membership.