Public Charity

NATIONAL FABRY DISEASE FOUNDATION

Based in HILLSBOROUGH, NC, NATIONAL FABRY DISEASE FOUNDATION operates as a Public Charity. The organization reported $592K in revenue, $739K in expenses, $270K in total assets for fiscal year 2025. Imperigo tracks 9 reported grant relationships connected to this organization totaling approximately $142K.

EIN: 202944028 HILLSBOROUGH, NC Latest filing: 2025
Total Revenue$592K
Total Expenses$739K
Total Assets$270K
Grant Records9
Funding Total$142K
Filing Years2020–2025

Mission

TO ENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED AND PROVIDED AN OPPORTUNITY FOR TREATMENT IN TIME TO AVOID A DIMINISHED QUALITY-OF-LIFE AND LIFE-THREATENING CONSEQUENCES; TO PROVIDE EDUCATION AND AWARENESS TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES, TO PHYSICIANS, AND TO THE PUBLIC; TO PROVIDE SUPPORT AND ASSISTANCE TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES; AND TO CONDUCT AND PROMOTE RESEARCH TO IMPROVE MANAGEMENT AND TREATMENT FOR FABRY DISEASE.

Officers & Directors

SENIOR PROGRAM MANAGER Casey A Mckenna
VICE CHAIR Derek Halberg
DIRECTOR Elizabeth Gaffin
CHAIR Gerald Walter
TREASURER Melanie Wilson
DIRECTOR Steven Rothman

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$69,744 4 grants
UNRESTRICTED
$66,317 4 grants
CHARITABLE DONATION
$6,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $592K $739K $270K
2024 $575K $683K $414K
2023 $308K $473K $521K
2021 $189K $217K $342K
2020 $545K $394K $370K

Between 2020 and 2025, reported annual revenue grew from $545K to $592K (+9%), with total assets most recently reported at $270K.

Interactive year-over-year charts and full filing details available with membership.

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