Public Charity

FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC

FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC, of ST AUGUSTINE, FL, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $482K in revenue, $315K in expenses, $1.0M in total assets. 22 publicly reported grants to this organization, totaling roughly $1.5M, appear in IRS filings.

EIN: 823128162 ST AUGUSTINE, FL Voluntary Health Associations & Medical Disciplines N.E.C. NTEE: G99 Latest filing: 2025
Total Revenue$482K
Total Expenses$315K
Total Assets$1.0M
Grant Records22
Funding Total$1.5M
Filing Years2021–2025

Mission

NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE

Where $100 goes at Foundation for Children with Neuroimmune Disorders Inc

How Foundation for Children with Neuroimmune Disorders Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$88 Programs the work itself
$12 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $88 for programs

$69
Physician education
78% of program spending · Reported in the filing: 150 programs
$17
Funded professor russell dale's pans research at univ
19% of program spending
$2
Offered free support and high quality education to 33k + patients and families
3% of program spending · Reported in the filing: 4,000 patients; 7,500 patients
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

TREASURER Dr Pierre Kory
PRESIDENT Johanna Conkey
OFFICER Johnna Workman
VICE PRESIDENT Leslie Phillips
SECRETARY Travis Conkey

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$1,150,460 5 grants
General Support
$297,394 15 grants
Unspecified
$11,356 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $482K $315K $1.0M
2024 $588K $366K $845K
2023 $849K $794K $705K
2022 $730K $567K $1.1M
2021 $438K $330K $399K

Between 2021 and 2025, reported annual revenue grew from $438K to $482K (+10%), with total assets most recently reported at $1.0M.

Interactive year-over-year charts and full filing details available with membership.

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