Public Charity

FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC

FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC, of ST AUGUSTINE, FL, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $482K in revenue, $315K in expenses, $1.0M in total assets. 20 publicly reported grants to this organization, totaling roughly $1.4M, appear in IRS filings.

EIN: 823128162 ST AUGUSTINE, FL Latest filing: 2025
Total Revenue$482K
Total Expenses$315K
Total Assets$1.0M
Grant Records20
Funding Total$1.4M
Filing Years2021–2025

Mission

NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE

Officers & Directors

TREASURER Dr Pierre Kory
PRESIDENT Johanna Conkey
OFFICER Johnna Workman
VICE PRESIDENT Leslie Phillips
SECRETARY Travis Conkey

Officer compensation and complete director data available with membership.

Top Grant Purposes

TO CREATE A CONTINUING MEDICAL EDUCATION PROGRAM FOR NC PHYSICIANS FOR PEDIATRIC ACUTE ONSET NEUROPSYCHIATRIC SYNDROME (PANS) AND PEDIATRIC AUTOIMMUNE NEUROPSYCHIATRIC DISORDERS ASSOCIATED WITH STREPTOCOCCAL INFECTIONS (PANDAS).
$967,460 1 grant
HEALTH
$183,000 4 grants
For grant recipient's exempt purposes
$154,710 7 grants
PROVIDE GENERAL OPERATING SUPPORT
$50,000 1 grant
General charitable purposes
$25,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $482K $315K $1.0M
2024 $588K $366K $845K
2023 $849K $794K $705K
2022 $730K $567K $1.1M
2021 $438K $330K $399K

Between 2021 and 2025, reported annual revenue grew from $438K to $482K (+10%), with total assets most recently reported at $1.0M.

Interactive year-over-year charts and full filing details available with membership.

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