Mission
WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION AND PATIENT DISCUSSION FORUM.
Small Public Charity
LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC
Based in SAINT PETERSBURG, FL, LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC operates as a Small Public Charity. The organization reported $119K in revenue, $153K in expenses, $354K in total assets for fiscal year 2025. Imperigo tracks 7 reported grant relationships connected to this organization totaling approximately $742K.
EIN: 261224181
SAINT PETERSBURG, FL
Latest filing: 2025
Total Revenue$119K
Total Expenses$153K
Total Assets$354K
Grant Records7
Funding Total$742K
Filing Years2021–2025
Sample Grants Received
GENERAL SUPPORT
$5,432
$95,000
MENTAL HEALTH GRANT
$15,000
$150,000
$465,000
Showing up to 5 of 7 total records — full history available with membership.
Officers & Directors
BOARD MEMBER
Kevin Martin
DIRECTOR OF OPERATIONS
Louise Murgia
EXECUTIVE DIRECTOR
Michael Kelly
BOARD MEMBER
Mitch Maersch
BOARD MEMBER
Ofelia Rodriguez Nievas
BOARD MEMBER
Samira Farouni
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $119K | $153K | $354K |
| 2024 | $271K | $311K | $386K |
| 2023 | $121K | $281K | $422K |
| 2022 | $322K | $320K | $579K |
| 2021 | $323K | $211K | $663K |
Between 2021 and 2025, reported annual revenue declined from $323K to $119K (-63%), with total assets most recently reported at $354K.
Interactive year-over-year charts and full filing details available with membership.