Public Charity

The Myositis Association

The Myositis Association is a Public Charity headquartered in Columbia, MD. Financial data from the 2024 filing: $2.0M revenue, $1.8M expenses, $2.0M total assets. 52 publicly reported grants to this organization, totaling roughly $927K, appear in IRS filings.

EIN: 541660976 Columbia, MD Latest filing: 2024
Total Revenue$2.0M
Total Expenses$1.8M
Total Assets$2.0M
Grant Records52
Funding Total$927K
Filing Years2019–2024

Mission

The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an

Officers & Directors

Director David Mochel
Director Frank Lipiecki
Director Holly Jones
Director Howard Gerrin Treasurer
Director Iazsmin Bauer Ventura
Director Jane Myles

Officer compensation and complete director data available with membership.

Top Grant Purposes

GENERAL SUPPORT
$306,166 16 grants
HUMAN SERVICES
$123,826 4 grants
For grant recipient's exempt purposes
$110,040 8 grants
Unrestricted
$85,940 4 grants
UNRESTRICTED
$84,686 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $2.0M $1.8M $2.0M
2023 $1.2M $1.9M $1.8M
2022 $1.3M $1.7M $2.3M
2020 $1.2M $1.2M $2.2M
2019 $1.0M $1.6M $2.2M

Between 2019 and 2024, reported annual revenue grew from $1.0M to $2.0M (+98%), with total assets most recently reported at $2.0M.

Interactive year-over-year charts and full filing details available with membership.

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