Public Charity

The Myositis Association

The Myositis Association is a Public Charity headquartered in Columbia, MD. Financial data from the 2024 filing: $2.0M revenue, $1.8M expenses, $2.0M total assets. 55 publicly reported grants to this organization, totaling roughly $970K, appear in IRS filings.

EIN: 541660976 Columbia, MD Developmentally Disabled Centers NTEE: P82 Latest filing: 2024
Total Revenue$2.0M
Total Expenses$1.8M
Total Assets$2.0M
Grant Records55
Funding Total$970K
Filing Years2019–2024

Mission

The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an

Where $100 goes at The Myositis Association

How The Myositis Association divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$73 Programs the work itself
$18 Management running the organization
$9 Fundraising raising the next dollar

Inside the $73 for programs

$30
Global Myositis Patient Conference
42% of program spending
$24
Research Grants
32% of program spending · Reported in the filing: 68 grants
$11
Other Program Services
15% of program spending · Reported in the filing: 13,000 members

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director David Mochel
Director Frank Lipiecki
Director Holly Jones
Director Howard Gerrin Treasurer
Director Iazsmin Bauer Ventura
Director Jane Myles

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$769,908 41 grants
Human & Social Services
$150,826 6 grants
Health & Medicine
$47,900 4 grants
Unspecified
$1,500 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $2.0M $1.8M $2.0M
2023 $1.2M $1.9M $1.8M
2022 $1.3M $1.7M $2.3M
2020 $1.2M $1.2M $2.2M
2019 $1.0M $1.6M $2.2M

Between 2019 and 2024, reported annual revenue grew from $1.0M to $2.0M (+98%), with total assets most recently reported at $2.0M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for The Myositis Association

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