Public Charity

ALSTROM SYNDROME INTERNATIONAL

ALSTROM SYNDROME INTERNATIONAL, of BURLESON, TX, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $440K in revenue, $233K in expenses, $388K in total assets. 23 publicly reported grants to this organization, totaling roughly $1.0M, appear in IRS filings.

EIN: 010515187 BURLESON, TX Developmentally Disabled Centers NTEE: P82 Latest filing: 2025
Total Revenue$440K
Total Expenses$233K
Total Assets$388K
Grant Records23
Funding Total$1.0M
Filing Years2021–2025

Mission

OUR MISSION IS TO PROVIDE SUPPORT, INFORMATION, AND COORDINATION WORLD-WIDE TO FAMILIES AND PROFESSIONALS EFFECTIVELY TREATING ALSTROM SYNDROME AS WE WORK TOWARD A CURE.

Where $100 goes at Alstrom Syndrome International

How Alstrom Syndrome International divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$73 Programs the work itself
$23 Management running the organization
$4 Fundraising raising the next dollar

Inside the $73 for programs

$25
Education
34% of program spending
$24
Research
33% of program spending
$24
Family support
33% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

PRESIDENT Chase Palmer
TREASURER Jennifer Potter
SECRETARY Michael Kirby
EXECUTIVE DIRECTOR Raquel Tucker

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$800,000 1 grant
General Support
$194,426 18 grants
Human & Social Services
$30,050 3 grants
Unspecified
$5,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $440K $233K $388K
2024 $257K $174K $181K
2023 $254K $235K $98K
2022 $168K $195K $79K
2021 $137K $82K $106K

Between 2021 and 2025, reported annual revenue grew from $137K to $440K (+220%), with total assets most recently reported at $388K.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for ALSTROM SYNDROME INTERNATIONAL

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