Public Charity

PRISMS Inc

PRISMS Inc is a Public Charity headquartered in Herndon, VA. Financial data from the 2025 filing: $439K revenue, $345K expenses, $710K total assets. 13 publicly reported grants to this organization, totaling roughly $272K, appear in IRS filings.

EIN: 541652029 Herndon, VA Birth Defects & Genetic Diseases NTEE: G20 Latest filing: 2025
Total Revenue$439K
Total Expenses$345K
Total Assets$710K
Grant Records13
Funding Total$272K
Filing Years2020–2025

Mission

PRISMS provides a range of services for persons with SMS telephone support, database of registered families, newsletters, informational packets for caregivers and medical professionals. P.R.I.S.M.S., Inc. engages individuals with medical and scientific expertise to serve on its Professional Advisory Board, conducts an international conference.

Where $100 goes at PRISMS Inc

How PRISMS Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$73 Programs the work itself
$20 Management running the organization
$7 Fundraising raising the next dollar

Inside the $73 for programs

$46
PRISMS provides support to our SMS community in a number of ways in including phone and email support, information sharing newsletters, annual reports, webinars, awareness materials, informational packets…
63% of program spending
$18
PRISMS continued to support the PCRC PRISMS Clinics and Research Consortium
25% of program spending
$9
PRISMS hosted the 12th Smith-Magenis Syndrome Research Symposium in Boulder, Colorado on September 25-26, 2025
12% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Board Member Allison Stephanouk
Board Member Amy Pereira
Board Member Denien Rasmussen
Secretary Diane Erth
Board Member Eric Rogers
Vice President Jackie Fallenstein

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$167,018 9 grants
Health & Medicine
$61,000 2 grants
International Aid & Development
$1,800 1 grant
Unspecified
$42,597 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $439K $345K $710K
2024 $474K $550K $608K
2023 $421K $275K $691K
2022 $359K $605K $599K
2020 $484K $223K $830K

Between 2020 and 2025, reported annual revenue declined from $484K to $439K (-9%), with total assets most recently reported at $710K.

Interactive year-over-year charts and full filing details available with membership.

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