Small Public Charity

SHARE AND CARE COCKAYNE SYNDROME NETWORK INC

Based in WATTERFORD, VA, SHARE AND CARE COCKAYNE SYNDROME NETWORK INC operates as a Small Public Charity. The organization reported $18K in revenue, $6K in expenses, $35K in total assets for fiscal year 2020. Imperigo tracks 6 reported grant relationships connected to this organization totaling approximately $112K.

EIN: 010557037 WATTERFORD, VA Birth Defects & Genetic Diseases NTEE: G20 Latest filing: 2020
Total Revenue$18K
Total Expenses$6K
Total Assets$35K
Grant Records6
Funding Total$112K
Filing Years2017–2020

Mission

To promote awareness of Cockayne syndrome and trichothiodystrophy, to educate and support physicians, research centers, and organizations addressing the cause of diagnosis while also collaborating with researchers and physicians to find treatments and the cure for Cockayne syndrome and Trichothiodystrophy, and to assist in support of those suffering from CS and TTD and their families.

Officers & Directors

BOARD MEMBER Brent Smith
VICE PRESIDENT Haylee Carroll
PRESIDENT/CEO Jacqueline Arias Clark
BOARD MEMBER Seth Zimmerman
SECRETARY Veronica Cuevas

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$97,123 4 grants
UNRESTRICTED
$14,625 2 grants

Financial Trends

Year Revenue Expenses Assets
2020 $18K $6K $35K
2019 $89K $109K $24K
2018 $106K $158K $44K
2017 $231K $193K $96K

Between 2017 and 2020, reported annual revenue declined from $231K to $18K (-92%), with total assets most recently reported at $35K.

Interactive year-over-year charts and full filing details available with membership.

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