Small Public Charity

SHARE AND CARE COCKAYNE SYNDROME NETWORK INC

Based in WATTERFORD, VA, SHARE AND CARE COCKAYNE SYNDROME NETWORK INC operates as a Small Public Charity. The organization reported $18K in revenue, $6K in expenses, $35K in total assets for fiscal year 2020. Imperigo tracks 6 reported grant relationships connected to this organization totaling approximately $112K.

EIN: 010557037 WATTERFORD, VA Birth Defects & Genetic Diseases NTEE: G20 Latest filing: 2020
Total Revenue$18K
Total Expenses$6K
Total Assets$35K
Grant Records6
Funding Total$112K
Filing Years2017–2020

Mission

To promote awareness of Cockayne syndrome and trichothiodystrophy, to educate and support physicians, research centers, and organizations addressing the cause of diagnosis while also collaborating with researchers and physicians to find treatments and the cure for Cockayne syndrome and Trichothiodystrophy, and to assist in support of those suffering from CS and TTD and their families.

Where $100 goes at Share and Care Cockayne Syndrome Network Inc

How Share and Care Cockayne Syndrome Network Inc divides every $100 it spends, from its own Form 990-EZ filings, averaged across 4 years.

$75 Programs the work itself
$25 Everything else operations and overhead

Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.

Inside the $75 for programs

$51
Share and Care CS Network family services program
68% of program spending
$19
Share and Care CS Network family services program
26% of program spending
$5
Good Grief" is a private Facebook group, facilitated by a bereaved parent who has been trained in counseling, and created for bereaved parents where they can provide peer-to-peer…
6% of program spending
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Source: Form 990-EZ filings with the IRS, latest fiscal year 2020. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

BOARD MEMBER Brent Smith
VICE PRESIDENT Haylee Carroll
PRESIDENT/CEO Jacqueline Arias Clark
BOARD MEMBER Seth Zimmerman
SECRETARY Veronica Cuevas

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$111,748 6 grants

Financial Trends

Year Revenue Expenses Assets
2020 $18K $6K $35K
2019 $89K $109K $24K
2018 $106K $158K $44K
2017 $231K $193K $96K

Between 2017 and 2020, reported annual revenue declined from $231K to $18K (-92%), with total assets most recently reported at $35K.

Interactive year-over-year charts and full filing details available with membership.

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