Mission
GENETIC ALLIANCE ENGAGES INDIVIDUALS, FAMILIES, AND COMMUNITIES TO TRANSFORM HEALTH.
Public Charity
GENETIC ALLIANCE INC
Based in DAMASCUS, MD, GENETIC ALLIANCE INC operates as a Public Charity. The organization reported $1.4M in revenue, $1.4M in expenses, $737K in total assets for fiscal year 2025. Imperigo tracks 25 reported grant relationships connected to this organization totaling approximately $1.4M.
EIN: 521571905
DAMASCUS, MD
Birth Defects & Genetic Diseases
NTEE: G20
Latest filing: 2025
Total Revenue$1.4M
Total Expenses$1.4M
Total Assets$737K
Grant Records25
Funding Total$1.4M
Filing Years2021–2025
Where $100 goes at Genetic Alliance Inc
How Genetic Alliance Inc divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$99
Programs
the work itself
<$1
Management
running the organization
$1
Fundraising
raising the next dollar
Inside the $99 for programs
$55
Genetic Alliance provides interactive tools to create, manage and disseminate information to educate individuals, families and communities
$44
Genetic Alliance endeavors to diagnose the world's under-resourced undiagnosed and to provide them with the support they need
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
MULTIPLE GRANTS FOR MULTIPLE PURPOSES
$10,000
THE SUBRECIPIENT WILL WORK WITH THE APHL NEWBORN SCREENING (NBS) PROGRAM TO SERVE AS THE SUBJECT MATTER EXPERT ON FAMILY ENGAGEMENT IN NEWBORN SCREENING. SPECIFICALLY, THE SUBRECIPIENT WILL LEAD ALL ACTIVITIES PERTAINING TO PROVIDING EDUCATION AND TRAINING TO DIVERSE FAMILIES AND PROVIDERS AND TO DEVELOP FAMILY LEADERS IN NATIONAL NEWBORN SCREENING
$219,667
SUBCONTRACT GRANT AWARD
$74,904
$29,200
THE SUBRECIPIENT WILL WORK WITH THE APHL NEWBORN SCREENING (NBS) PROGRAM TO SERVE AS THE SUBJECT MATTER EXPERT ON FAMILY ENGAGEMENT IN NEWBORN SCREENING. SPECIFICALLY, THE SUBRECIPIENT WILL LEAD ALL ACTIVITIES PERTAINING TO PROVIDING EDUCATION AND TRAINING TO DIVERSE FAMILIES AND PROVIDERS AND TO DEVELOP FAMILY LEADERS IN NATIONAL NEWBORN SCREENING.
$184,500
Showing up to 5 of 25 total records — full history available with membership.
Officers & Directors
DIRECTOR
Julia Ortega
DIRECTOR
Kelly Edwards Phd
SECRETARY
Kemp Battle
DIRECTOR
Ryan Taft
PRESIDENT/CEO
Sharon F Terry
DIRECTOR
Usama Malik
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $1.4M | $1.4M | $737K |
| 2024 | $1.6M | $1.7M | $755K |
| 2023 | $2.5M | $2.5M | $859K |
| 2022 | $3.2M | $3.4M | $705K |
| 2021 | $2.3M | $2.5M | $1.2M |
Between 2021 and 2025, reported annual revenue declined from $2.3M to $1.4M (-42%), with total assets most recently reported at $737K.
Interactive year-over-year charts and full filing details available with membership.