Public Charity

CYSTIC FIBROSIS FOUNDATION

CYSTIC FIBROSIS FOUNDATION, of BETHESDA, MD, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $355.8M in revenue, $439.1M in expenses, $5.0B in total assets. 959 publicly reported grants to this organization, totaling roughly $67.5M, appear in IRS filings.

EIN: 131930701 BETHESDA, MD Latest filing: 2024
Total Revenue$355.8M
Total Expenses$439.1M
Total Assets$5.0B
Grant Records959
Funding Total$67.5M
Filing Years2019–2024

Mission

SEE SCHEDULE O

Officers & Directors

Chief Medical Officer Beg. 7/1/2024 Albert Faro Md
MANAGING DIRECTOR, INVESTMENTS Andrew Lewis
Chief Medical Officer Ending 7/1/2024 Bruce Marshall Md
TRUSTEE Carole B Griego Md
TREASURER David A Mount
TRUSTEE Dodzie Sogah Phd

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$19,757,349 9 grants
GENERAL SUPPORT
$10,272,262 98 grants
HEALTH
$7,544,969 31 grants
Unspecified
$2,144,695 24 grants
UNRESTRICTED GENERAL SUPPORT
$1,629,199 27 grants

Financial Trends

Year Revenue Expenses Assets
2024 $355.8M $439.1M $5.0B
2023 $292.0M $443.4M $4.9B
2022 $248.6M $396.7M $4.7B
2020 $800.6M $381.4M $5.4B
2019 $605.8M $348.7M $4.5B

Between 2019 and 2024, reported annual revenue declined from $605.8M to $355.8M (-41%), with total assets most recently reported at $5.0B.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for CYSTIC FIBROSIS FOUNDATION

Complete financials, all 959 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 498,000+ organizations.

Full Financial History Complete Grant Activity Officer Compensation Year-over-Year Charts Geographic Grant Map Data Exports
7-day free trial Cancel any time