Public Charity

THE SUMAIRA FOUNDATION INC

THE SUMAIRA FOUNDATION INC, of SOMERVILLE, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $1.3M in revenue, $1.3M in expenses, $619K in total assets. 6 publicly reported grants to this organization, totaling roughly $41K, appear in IRS filings.

EIN: 472398246 SOMERVILLE, MA Neurology & Neuroscience Research NTEE: H96 Latest filing: 2024
Total Revenue$1.3M
Total Expenses$1.3M
Total Assets$619K
Grant Records6
Funding Total$41K
Filing Years2019–2024

Mission

THE SUMAIRA FOUNDATION, INC. (THE ORGANIZATION"), A 501(C)(3) ORGANIZATION, THAT IS DEDICATED TO GENERATING GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER ("NMOSD"), FUNDRAISING TO HELP FIND A CURE, AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS AND THEIR CAREGIVERS. THE ORGANIZATION IS SUPPORTED PRIMARILY THROUGH GRANTS AND FUNDRAISING EVENTS.

Where $100 goes at The Sumaira Foundation Inc

How The Sumaira Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$70 Programs the work itself
$12 Management running the organization
$18 Fundraising raising the next dollar

Inside the $70 for programs

$33
Grants to facilitate research for the treatment of neuromyelitis optica and myelin oligodendrocyte glycoprotein anitbody disease
47% of program spending
$20
Organizing regional educational events featuring local experts to foster community, empowerment and support for nmosd/mogad patients, caregivers, clinicians and researchers
29% of program spending
$17
Working to generate global awareness of neuromyelitis optica spectrum disorder (nmosd) and myelin oligodendrocyte glycoprotein anitbody disease (mogad), and creating a community of support for patients + their…
24% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Alexis Ahmad
DIRECTOR Lauren Michaels
TERM ENDED 05/2024 Melissa Barash
DIRECTOR Michael Devlin
DIRECTOR Stephanie Hamzo
PRESIDENT Sumaira Ahmed

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$32,361 5 grants
Mental Health & Substance Abuse
$9,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $1.3M $1.3M $619K
2023 $1.8M $1.5M $717K
2022 $1.5M $1.4M $457K
2020 $158K $118K $165K
2019 $37K $32K $12K

Between 2019 and 2024, reported annual revenue grew from $37K to $1.3M (+3528%), with total assets most recently reported at $619K.

Interactive year-over-year charts and full filing details available with membership.

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