Mission
PROJECT ALIVE EXISTS TO FIND A CURE FOR HUNTER SYNDROME THROUGH RESEARCH AND ADVOCACY, AND PROVIDE EDUCATION AND RESOURCES TO THE HUNTER SYNDROME COMMUNITY.
Public Charity
PROJECT ALIVE
Based in DAVENPORT, FL, PROJECT ALIVE operates as a Public Charity. The organization reported $468K in revenue, $849K in expenses, $1.9M in total assets for fiscal year 2025. Imperigo tracks 5 reported grants from this foundation totaling approximately $361K.
EIN: 464617970
DAVENPORT, FL
Public Foundations
NTEE: T30
Latest filing: 2025
Total Revenue$468K
Total Expenses$849K
Total Assets$1.9M
Grants Given5
Grant Total$361K
Filing Years2020–2025
Where $100 goes at Project Alive
How Project Alive divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$84
Programs
the work itself
$8
Management
running the organization
$8
Fundraising
raising the next dollar
Inside the $84 for programs
$58
"N person
$12
Family case management
$9
Research grants
Plus 2 more programs. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Given
PHASE II OF THE MPS AIRWAY PROJECT, PUBLICATION PHASE OF INTERNATIONAL CONSENSUS GUIDELINES ON AIRWAY MANAGEMENT.
$31,931
BRIANNA YUND PHD LP-UNIVERSITY OF MN
PROJECT: COGNITIVE AND SOMATIC OUTCOMES OF HEMATOPOIETIC CELL TRANSPLANTATION FOR HUNTER SYNDROME.
$14,084
RESEARCH GRANT.
$206,811
RESEARCH GRANT.
$60,000
RESEARCH GRANT.
$47,757
Showing up to 5 of 5 total records — full history available with membership.
Officers & Directors
DIRECTOR
Aaron Byzak
DIRECTOR
Anne And Jeff Denneen
DIRECTOR
Ashly Wiebelt
DIRECTOR
Cory Briddle
DIRECTOR
Daiza Gordon
VICE CHAIR
Elia Henriquez
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $468K | $849K | $1.9M |
| 2024 | $407K | $914K | $2.3M |
| 2023 | $302K | $439K | $2.6M |
| 2022 | $364K | $247K | $2.7M |
| 2020 | $316K | $139K | $1.4M |
Between 2020 and 2025, reported annual revenue grew from $316K to $468K (+48%), with total assets most recently reported at $1.9M.
Interactive year-over-year charts and full filing details available with membership.
Grant Geography
Grants from this foundation were reported to recipients in CA, FL, MN, NC.
CAFLMNNC
Full geographic grant map with state-by-state breakdown available with membership.