Public Charity

NATIONAL MPS SOCIETY INC

NATIONAL MPS SOCIETY INC, of DURHAM, NC, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $2.1M in revenue, $2.5M in expenses, $3.9M in total assets. 46 publicly reported grants to this organization, totaling roughly $795K, appear in IRS filings.

EIN: 112734849 DURHAM, NC Latest filing: 2024
Total Revenue$2.1M
Total Expenses$2.5M
Total Assets$3.9M
Grant Records46
Funding Total$795K
Filing Years2020–2024

Mission

THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).

Sample Grants Received

2025
PHASE II OF THE MPS AIRWAY PROJECT, PUBLICATION PHASE OF INTERNATIONAL CONSENSUS GUIDELINES ON AIRWAY MANAGEMENT.
$31,931
2024
For grant recipient's exempt purposes
$54,700
$34,565
2024
GENERAL SUPPORT
$22,407

Showing up to 5 of 46 total records — full history available with membership.

Officers & Directors

DIRECTOR Carl Kapes
DIRECTOR Jason Madison
DIRECTOR Lisa Berry
BOARD CHAIRM Lisa Todd
TREASURER Lynn Scott Hopkins
CSO Matthew Ellinwood

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$202,495 6 grants
GENERAL SUPPORT
$195,530 9 grants
Donation for rare diseases research
$87,000 2 grants
HEALTH
$51,379 4 grants
Community assistance
$42,760 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $2.1M $2.5M $3.9M
2023 $2.3M $2.8M $4.0M
2022 $1.8M $2.7M $4.5M
2021 $1.9M $2.1M $5.4M
2020 $2.0M $1.7M $5.5M

Between 2020 and 2024, reported annual revenue grew from $2.0M to $2.1M (+5%), with total assets most recently reported at $3.9M.

Interactive year-over-year charts and full filing details available with membership.

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