Mission
THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES.
Public Charity
RARE CANCER RESEARCH FOUNDATION
RARE CANCER RESEARCH FOUNDATION is a nonprofit organization categorized as Public Charity based in DURHAM, NC. Its most recent IRS filing (2025) reports revenue of $446K, expenses of $1.7M, total assets of $1.4M. Imperigo tracks 17 reported grant relationships connected to this organization totaling approximately $2.2M.
EIN: 463405526
DURHAM, NC
Cancer Research
NTEE: H30
Latest filing: 2025
Total Revenue$446K
Total Expenses$1.7M
Total Assets$1.4M
Grant Records17
Funding Total$2.2M
Filing Years2020–2025
Where $100 goes at Rare Cancer Research Foundation
How Rare Cancer Research Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$78
Programs
the work itself
$18
Management
running the organization
$4
Fundraising
raising the next dollar
Inside the $78 for programs
$23
Data platform a program initiated in 2023 to develop a unified platform to host combined molecular and clinical rare cancer data obtained internally and externally, which will be…
$20
Prism (h37)
$20
Pattern.Org a groundbreaking online platform that empowers cancer patients to consent and donate living tissue and clinical data to research regardless of their treatment location in the united…
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$18,101
GENERAL SUPPORT
$18,101
For grant recipient's exempt purposes
$13,000
GENERAL
$5,038
$1,000,000
Showing up to 5 of 17 total records — full history available with membership.
Officers & Directors
DIR BIOBANKI
Amber Smith
PRES. OF PAT
Barbara Van Hare
DATA ENGINEE
Benjamin Kamphaus
CHAIRMAN
Chris Heery Md
HEAD OF PRIS
Christine Spencer
CLINICAL DAT
Hana Littleford
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $446K | $1.7M | $1.4M |
| 2024 | $1.8M | $2.2M | $3.1M |
| 2023 | $3.5M | $2.2M | $3.0M |
| 2022 | $38K | $334K | $758K |
| 2020 | $80K | $183K | $158K |
Between 2020 and 2025, reported annual revenue grew from $80K to $446K (+460%), with total assets most recently reported at $1.4M.
Interactive year-over-year charts and full filing details available with membership.