Mission
THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.
Public Charity
CHORDOMA FOUNDATION
Based in DURHAM, NC, CHORDOMA FOUNDATION operates as a Public Charity. The organization reported $13.4M in revenue, $6.1M in expenses, $18.0M in total assets for fiscal year 2025. Imperigo tracks 80 reported grant relationships connected to this organization totaling approximately $13.0M.
EIN: 208423943
DURHAM, NC
Cancer Research
NTEE: H30
Latest filing: 2025
Total Revenue$13.4M
Total Expenses$6.1M
Total Assets$18.0M
Grant Records80
Funding Total$13.0M
Filing Years2021–2025
Where $100 goes at Chordoma Foundation
How Chordoma Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$79
Programs
the work itself
$8
Management
running the organization
$13
Fundraising
raising the next dollar
Inside the $79 for programs
$64
(Research) to accelerate the development of better treatments for chordoma, we conducted, supported and enabled high-impact research spanning basic, translational and clinical science
$15
(Patient services) to improve the lives of individuals affected by chordoma, we helped patients and their families find accurate information about chordoma and treatment options, overcome barriers to…
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$19,987
GENERAL SUPPORT
$7,500
For grant recipient's exempt purposes
$10,061,260
$500,000
GENERAL SUPPORT
$50,000
Showing up to 5 of 80 total records — full history available with membership.
Officers & Directors
DIRECTOR (TO 09/25)
Alicia Jeffreys
OPERATIONS AND PROGRAM MANAGER
Ashley White
DIRECTOR
Christopher Heery
CHIEF SCIENTIFIC OFFICER
Daniel Freed
CHAIR
David Sandak
HEAD OF FINANCE/OPS, ASST TREASURER
Jesse Bongartz
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $13.4M | $6.1M | $18.0M |
| 2024 | $5.4M | $6.8M | $11.4M |
| 2023 | $7.4M | $4.6M | $11.0M |
| 2022 | $4.9M | $3.1M | $7.6M |
| 2021 | $3.1M | $3.4M | $6.5M |
Between 2021 and 2025, reported annual revenue grew from $3.1M to $13.4M (+335%), with total assets most recently reported at $18.0M.
Interactive year-over-year charts and full filing details available with membership.