Public Charity

THE CUTE SYNDROME FOUNDATION

THE CUTE SYNDROME FOUNDATION, of OZARK, MO, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $365K in revenue, $424K in expenses, $177K in total assets. 11 publicly reported grants to this organization, totaling roughly $196K, appear in IRS filings.

EIN: 462699066 OZARK, MO Latest filing: 2024
Total Revenue$365K
Total Expenses$424K
Total Assets$177K
Grant Records11
Funding Total$196K
Filing Years2021–2024

Mission

OUR MISSION IS TO RAISE AWARENESS OF SCN8A MUTATIONS, FUND THE THE SCIENTISTS RESEARCHING SCN8A, AND SUPPORT THE FAMILIES WHO ARE AFFECTED BY SCN8A.

Officers & Directors

PRESIDENT Hillary Savoie
EXECUTIVE DIRECTOR Kacie Craig
DIRECTOR Lan Aronson
SECRETARY Marianne Sutcliffe
VICE CHAIR Philip Gitlen
TREASURER Ryan Pitino

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$71,451 3 grants
GENERAL SUPPORT
$54,638 3 grants
UNRESTRICTED
$40,273 2 grants
MENTAL HEALTH GRANT
$14,973 1 grant
2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT
$10,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $365K $424K $177K
2023 $440K $422K $308K
2022 $353K $291K $290K
2021 $246K $194K $221K

Between 2021 and 2024, reported annual revenue grew from $246K to $365K (+49%), with total assets most recently reported at $177K.

Interactive year-over-year charts and full filing details available with membership.

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