Mission
OUR MISSION IS TO RAISE AWARENESS OF SCN8A MUTATIONS, FUND THE THE SCIENTISTS RESEARCHING SCN8A, AND SUPPORT THE FAMILIES WHO ARE AFFECTED BY SCN8A.
Public Charity
THE CUTE SYNDROME FOUNDATION
THE CUTE SYNDROME FOUNDATION, of OZARK, MO, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $365K in revenue, $424K in expenses, $177K in total assets. 12 publicly reported grants to this organization, totaling roughly $209K, appear in IRS filings.
EIN: 462699066
OZARK, MO
Fund Raising & Fund Distribution
NTEE: H12
Latest filing: 2024
Total Revenue$365K
Total Expenses$424K
Total Assets$177K
Grant Records12
Funding Total$209K
Filing Years2021–2024
Where $100 goes at The Cute Syndrome Foundation
How The Cute Syndrome Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.
$73
Programs
the work itself
$25
Management
running the organization
$2
Fundraising
raising the next dollar
Inside the $73 for programs
$61
Support for families affected by scn8a
$12
Support for scientists researching scn8a and raising public awareness of this gene mutation
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$30,164
GENERAL SUPPORT
$12,748
GENERAL SUPPORT
$15,924
MENTAL HEALTH GRANT
$14,973
Program support
$5,000
Showing up to 5 of 12 total records — full history available with membership.
Officers & Directors
PRESIDENT
Hillary Savoie
EXECUTIVE DIRECTOR
Kacie Craig
DIRECTOR
Lan Aronson
SECRETARY
Marianne Sutcliffe
VICE CHAIR
Philip Gitlen
TREASURER
Ryan Pitino
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $365K | $424K | $177K |
| 2023 | $440K | $422K | $308K |
| 2022 | $353K | $291K | $290K |
| 2021 | $246K | $194K | $221K |
Between 2021 and 2024, reported annual revenue grew from $246K to $365K (+49%), with total assets most recently reported at $177K.
Interactive year-over-year charts and full filing details available with membership.