Small Public Charity

AUTOIMMUNE ENCEPHALITIS ALLIANCE INC

Based in DURHAM, NC, AUTOIMMUNE ENCEPHALITIS ALLIANCE INC operates as a Small Public Charity. The organization reported $151K in revenue, $186K in expenses, $71K in total assets for fiscal year 2025. Imperigo tracks 11 reported grant relationships connected to this organization totaling approximately $102K.

EIN: 461584730 DURHAM, NC Voluntary Health Associations & Medical Disciplines N.E.C. NTEE: G99 Latest filing: 2025
Total Revenue$151K
Total Expenses$186K
Total Assets$71K
Grant Records11
Funding Total$102K
Filing Years2020–2025

Mission

TO SUPPORT ALL MEMBERS OF THE AE COMMUNITY SO NO ONE FACES AE ALONE.

Where $100 goes at Autoimmune Encephalitis Alliance Inc

How Autoimmune Encephalitis Alliance Inc divides every $100 it spends, from its own Form 990-EZ filings, averaged across 8 years.

$55 Programs the work itself
$45 Everything else operations and overhead

Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.

Inside the $55 for programs

$25
Program 3
45% of program spending · Reported in the filing: 613 attendees; 123 individuals; 80 people
$23
Program 1
41% of program spending · Reported in the filing: 125 attendees
$7
Program 2
14% of program spending
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Source: Form 990-EZ filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR & MAB LEADER Amanda Piquet
DIRECTOR & MAB LEADER (TO FEB 2025) Anusha Yeshokumar
TREASURER Caterri Woodrum
DIRECTOR Ekemini Obgu
DIRECTOR & MAB LEADER (TO FEB 2025) Heather Van Mater
SECRETARY Jacqueline Mcclain

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$88,737 9 grants
Health & Medicine
$13,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $151K $186K $71K
2024 $145K $187K $106K
2023 $144K $191K $147K
2022 $218K $184K $194K
2020 $205K $202K $189K

Between 2020 and 2025, reported annual revenue declined from $205K to $151K (-27%), with total assets most recently reported at $71K.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for AUTOIMMUNE ENCEPHALITIS ALLIANCE INC

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