Mission
To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
Public Charity
Association for Creatine Deficiencies
Association for Creatine Deficiencies is a nonprofit organization categorized as Public Charity based in Carlsbad, CA. Its most recent IRS filing (2024) reports revenue of $411K, expenses of $654K, total assets of $419K. Imperigo tracks 29 reported grant relationships connected to this organization totaling approximately $984K.
EIN: 462133007
Carlsbad, CA
Voluntary Health Associations & Medical Disciplines N.E.C.
NTEE: G99
Latest filing: 2024
Total Revenue$411K
Total Expenses$654K
Total Assets$419K
Grant Records29
Funding Total$984K
Filing Years2019–2024
Where $100 goes at Association for Creatine Deficiencies
How Association for Creatine Deficiencies divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$81
Programs
the work itself
$12
Management
running the organization
$7
Fundraising
raising the next dollar
Inside the $81 for programs
$81
Providing accurate and up to date information through attendance at Medical & Scientific conferences, maintaining informational website, hosting CCDS conference and distributing recordings of talks to accelerate knowledge…
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
$10,000
$21,750
GENERAL SUPPORT
$14,530
GENERAL SUPPORT
$9,351
GENERAL SUPPORT
$9,351
Showing up to 5 of 29 total records — full history available with membership.
Officers & Directors
Director of Education
Celeste Graham
Board Chair
Daniel Coller
Director of Comm
Erin Coller
Executive Director
Heidi Wallis
Director of Advocacy
Kim Tuminello
Director of Compliance
Mikelle Law
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $411K | $654K | $419K |
| 2023 | $588K | $603K | $675K |
| 2022 | $699K | $600K | $685K |
| 2020 | $639K | $96K | $714K |
| 2019 | $129K | $88K | $165K |
Between 2019 and 2024, reported annual revenue grew from $129K to $411K (+220%), with total assets most recently reported at $419K.
Interactive year-over-year charts and full filing details available with membership.