Public Charity

Association for Creatine Deficiencies

Association for Creatine Deficiencies is a nonprofit organization categorized as Public Charity based in Carlsbad, CA. Its most recent IRS filing (2024) reports revenue of $411K, expenses of $654K, total assets of $419K. Imperigo tracks 26 reported grant relationships connected to this organization totaling approximately $965K.

EIN: 462133007 Carlsbad, CA Latest filing: 2024
Total Revenue$411K
Total Expenses$654K
Total Assets$419K
Grant Records26
Funding Total$965K
Filing Years2019–2024

Mission

To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).

Officers & Directors

Director of Education Celeste Graham
Board Chair Daniel Coller
Director of Comm Erin Coller
Executive Director Heidi Wallis
Director of Advocacy Kim Tuminello
Director of Compliance Mikelle Law

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$615,000 2 grants
GENERAL SUPPORT
$163,535 7 grants
For grant recipient's exempt purposes
$90,300 7 grants
HEALTH
$59,000 4 grants
CHARITABLE DONATION
$13,000 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $411K $654K $419K
2023 $588K $603K $675K
2022 $699K $600K $685K
2020 $639K $96K $714K
2019 $129K $88K $165K

Between 2019 and 2024, reported annual revenue grew from $129K to $411K (+220%), with total assets most recently reported at $419K.

Interactive year-over-year charts and full filing details available with membership.

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