Small Public Charity

FORGOTTEN DISEASES RESEARCH FOUNDATION

FORGOTTEN DISEASES RESEARCH FOUNDATION is a Small Public Charity headquartered in SANTA CLARA, CA. Financial data from the 2025 filing: $137K revenue, $100K expenses, $157K total assets. 8 publicly reported grants to this organization, totaling roughly $329K, appear in IRS filings.

EIN: 454470463 SANTA CLARA, CA Latest filing: 2025
Total Revenue$137K
Total Expenses$100K
Total Assets$157K
Grant Records8
Funding Total$329K
Filing Years2021–2025

Mission

FORGOTTON DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.

Officers & Directors

BOARD MEMBER Heather Kerr
PRESIDENT Martin O'connor
SECRETARY Natalia Lukomski Quiroz
TREASURER Valerie Natale

Officer compensation and complete director data available with membership.

Top Grant Purposes

SUB-AWARD
$257,696 5 grants
Medical Research
$71,610 3 grants

Financial Trends

Year Revenue Expenses Assets
2025 $137K $100K $157K
2024 $87K $83K $120K
2023 $72K $79K $117K
2022 $22K $28K $123K
2021 $93K $76K $129K

Between 2021 and 2025, reported annual revenue grew from $93K to $137K (+47%), with total assets most recently reported at $157K.

Interactive year-over-year charts and full filing details available with membership.

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