Public Charity

Ataxia Telangiectasia Children's Project Inc

Ataxia Telangiectasia Children's Project Inc is a Public Charity headquartered in Coconut Creek, FL. Financial data from the 2025 filing: $1.8M revenue, $2.2M expenses, $3.1M total assets. 47 publicly reported grants to this organization, totaling roughly $1.8M, appear in IRS filings.

EIN: 650427215 Coconut Creek, FL Biological & Life Sciences NTEE: U50 Latest filing: 2025
Total Revenue$1.8M
Total Expenses$2.2M
Total Assets$3.1M
Grant Records47
Funding Total$1.8M
Filing Years2021–2025

Mission

Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease, and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms, and biomarker development - to optimize disease management strategies, develop new treatments, and find a cure.

Where $100 goes at Ataxia Telangiectasia Children's Project Inc

How Ataxia Telangiectasia Children's Project Inc divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.

$86 Programs the work itself
$5 Management running the organization
$9 Fundraising raising the next dollar

Inside the $86 for programs

$57
Research and Clinical GrantsThe A-T Children's Project provides competitive awards for scientific and clinical research grants related to finding life-improving therapies and a cure for ataxia-telangiectasia
67% of program spending
$17
Conferences and Research SupportThe A-T Children's Project holds scientific meetings and workshops regularly as a way to encourage more cooperation between A-T research teams, to reduce redundancy in…
19% of program spending
$8
Awareness and EducationThe A-T Children's Project maintains a database of people interested in receiving news and other information from the A-T Children's Project including families, extended family members…
9% of program spending

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Vice President Amy Madison
President Bradley A Margus
Director David Veldink
Director Douglas Weckstein
Director Elizabeth Hughes
Secretary Gregory Jehlik

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$1,522,746 41 grants
Research & Policy
$279,029 4 grants
Unspecified
$7,137 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $1.8M $2.2M $3.1M
2024 $2.5M $1.9M $2.8M
2023 $1.6M $1.5M $2.1M
2022 $1.7M $1.7M $2.0M
2021 $1.5M $1.3M $1.5M

Between 2021 and 2025, reported annual revenue grew from $1.5M to $1.8M (+24%), with total assets most recently reported at $3.1M.

Interactive year-over-year charts and full filing details available with membership.

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