Public Charity

EHLERS-DANLOS SOCIETY

EHLERS-DANLOS SOCIETY is a Public Charity headquartered in NEW YORK, NY. Financial data from the 2024 filing: $5.0M revenue, $4.5M expenses, $8.2M total assets. 38 publicly reported grants to this organization, totaling roughly $5.1M, appear in IRS filings.

EIN: 382813140 NEW YORK, NY Latest filing: 2024
Total Revenue$5.0M
Total Expenses$4.5M
Total Assets$8.2M
Grant Records38
Funding Total$5.1M
Filing Years2020–2024

Mission

THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGANIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLABORATIVELY TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD.

Officers & Directors

DIRECTOR Aisling Green
DIRECTOR Akilah Cadet
DIRECTOR Amy Rochlin
DIRECTOR Anoushe Husain
DIRECTOR Clair Francomano
CFO Eric Alley

Officer compensation and complete director data available with membership.

Top Grant Purposes

FOR RECIPIENT'S EXEMPT PURPOSE
$2,734,281 3 grants
Unrestricted
$887,232 5 grants
UNRESTRICTED
$886,175 4 grants
GENERAL SUPPORT
$308,293 13 grants
For recipient's exempt purpose
$122,600 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $5.0M $4.5M $8.2M
2023 $9.8M $5.2M $8.7M
2022 $4.5M $4.1M $3.2M
2021 $4.2M $3.4M $2.8M
2020 $2.2M $1.7M $2.2M

Between 2020 and 2024, reported annual revenue grew from $2.2M to $5.0M (+122%), with total assets most recently reported at $8.2M.

Interactive year-over-year charts and full filing details available with membership.

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