Public Charity

EHLERS-DANLOS SOCIETY

EHLERS-DANLOS SOCIETY is a Public Charity headquartered in NEW YORK, NY. Financial data from the 2025 filing: $9.6M revenue, $9.4M expenses, $9.6M total assets. 40 publicly reported grants to this organization, totaling roughly $5.4M, appear in IRS filings.

EIN: 382813140 NEW YORK, NY Health Care N.E.C. NTEE: E99 Latest filing: 2025
Total Revenue$9.6M
Total Expenses$9.4M
Total Assets$9.6M
Grant Records40
Funding Total$5.4M
Filing Years2021–2025

Mission

THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGANIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLABORATIVELY TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD.

Sample Grants Received

2025
TO DONATE FUNDS TO AN ORGANIZATION THAT CLOSELY MATCHED THE EHLER'S DANLOS RESEARCH FOUNDATION'S MISSION.
$297,267
2024
UNRESTRICTED
$185,160
2024
GENERAL SUPPORT
$80,302
2024
FOR RECIPIENT'S EXEMPT PURPOSE
$42,184
$33,890

Showing up to 5 of 40 total records — full history available with membership.

Officers & Directors

DIRECTOR Aisling Green
DIRECTOR Akilah Cadet
DIRECTOR Amy Rochlin
DIRECTOR Anoushe Husain
DIRECTOR Clair Francomano
CFO Eric Alley

Officer compensation and complete director data available with membership.

Top Grant Purposes

FOR RECIPIENT'S EXEMPT PURPOSE
$2,776,465 4 grants
Unrestricted
$887,232 5 grants
UNRESTRICTED
$886,175 4 grants
GENERAL SUPPORT
$308,293 13 grants
TO DONATE FUNDS TO AN ORGANIZATION THAT CLOSELY MATCHED THE EHLER'S DANLOS RESEARCH FOUNDATION'S MISSION.
$297,267 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $9.6M $9.4M $9.6M
2024 $5.0M $4.5M $8.2M
2023 $9.8M $5.2M $8.7M
2022 $4.5M $4.1M $3.2M
2021 $4.2M $3.4M $2.8M

Between 2021 and 2025, reported annual revenue grew from $4.2M to $9.6M (+127%), with total assets most recently reported at $9.6M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for EHLERS-DANLOS SOCIETY

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