Mission
PROMOTE AND INCREASE RESEARCH OF THE EHLERS-DANLOS SYNDROMES
Public Charity
EHLERS-DANLOS RESEARCH FOUNDATION INC
EHLERS-DANLOS RESEARCH FOUNDATION INC, of PIKESVILLE, MD, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $29K in revenue, $322K in expenses. 16 publicly reported grants to this organization, totaling roughly $346K, appear in IRS filings.
EIN: 844482546
PIKESVILLE, MD
Latest filing: 2025
Total Revenue$29K
Total Expenses$322K
Grant Records16
Funding Total$346K
Filing Years2020–2025
Sample Grants Received
$11,000
UNRESTRICTED
$10,853
GENERAL SUPPORT
$9,446
For grant recipient's exempt purposes
$112,050
UNRESTRICTED
$56,683
Showing up to 5 of 16 total records — full history available with membership.
Officers & Directors
MEDICAL DIRECTOR
Dr Alissa Zingman
DIRECTOR
Ilene Ruhoy
TREASURER
Jayne Gavrity
PRESIDENT
Jennifer Spiegel Berman
FUNDRAISING DIRECTOR
Jessika Auerbach
DIRECTOR
Misia Van Arsdale
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $29K | $322K | — |
| 2024 | $121K | $239K | $293K |
| 2023 | $281K | $336K | $412K |
| 2022 | $213K | $68K | $466K |
| 2020 | $109K | $13K | $97K |
Between 2020 and 2025, reported annual revenue declined from $109K to $29K (-74%).
Interactive year-over-year charts and full filing details available with membership.