Mission
PROMOTE AND INCREASE RESEARCH OF THE EHLERS-DANLOS SYNDROMES
Public Charity
EHLERS-DANLOS RESEARCH FOUNDATION INC
EHLERS-DANLOS RESEARCH FOUNDATION INC, of PIKESVILLE, MD, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $29K in revenue, $322K in expenses. 17 publicly reported grants to this organization, totaling roughly $355K, appear in IRS filings.
EIN: 844482546
PIKESVILLE, MD
Latest filing: 2025
Total Revenue$29K
Total Expenses$322K
Grant Records17
Funding Total$355K
Filing Years2020–2025
Where $100 goes at Ehlers-Danlos Research Foundation Inc
How Ehlers-Danlos Research Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.
$77
Programs
the work itself
$22
Management
running the organization
$1
Fundraising
raising the next dollar
Inside the $77 for programs
$77
Promote and increase research of the ehlers-danlos syndromes
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
$11,000
UNRESTRICTED
$10,853
GENERAL SUPPORT
$9,446
GENERAL SUPPORT
$9,446
For grant recipient's exempt purposes
$112,050
Showing up to 5 of 17 total records — full history available with membership.
Officers & Directors
MEDICAL DIRECTOR
Dr Alissa Zingman
DIRECTOR
Ilene Ruhoy
TREASURER
Jayne Gavrity
PRESIDENT
Jennifer Spiegel Berman
FUNDRAISING DIRECTOR
Jessika Auerbach
DIRECTOR
Misia Van Arsdale
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $29K | $322K | — |
| 2024 | $121K | $239K | $293K |
| 2023 | $281K | $336K | $412K |
| 2022 | $213K | $68K | $466K |
| 2020 | $109K | $13K | $97K |
Between 2020 and 2025, reported annual revenue declined from $109K to $29K (-74%).
Interactive year-over-year charts and full filing details available with membership.