Public Charity

EHLERS-DANLOS RESEARCH FOUNDATION INC

EHLERS-DANLOS RESEARCH FOUNDATION INC, of PIKESVILLE, MD, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $121K in revenue, $239K in expenses, $293K in total assets. 16 publicly reported grants to this organization, totaling roughly $346K, appear in IRS filings.

EIN: 844482546 PIKESVILLE, MD Latest filing: 2024
Total Revenue$121K
Total Expenses$239K
Total Assets$293K
Grant Records16
Funding Total$346K
Filing Years2020–2024

Mission

PROMOTE AND INCREASE RESEARCH OF THE EHLERS-DANLOS SYNDROMES

Officers & Directors

MEDICAL DIRECTOR Dr Alissa Zingman
DIRECTOR Ilene Ruhoy
TREASURER Jayne Gavrity
PRESIDENT Jennifer Spiegel Berman
FUNDRAISING DIRECTOR Jessika Auerbach
DIRECTOR Misia Van Arsdale

Officer compensation and complete director data available with membership.

Top Grant Purposes

UNRESTRICTED
$128,298 4 grants
For grant recipient's exempt purposes
$112,050 1 grant
GENERAL SUPPORT
$35,391 3 grants
HEALTH
$26,350 3 grants
DISEASE/DISORDER
$21,800 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $121K $239K $293K
2023 $281K $336K $412K
2022 $213K $68K $466K
2020 $109K $13K $97K

Between 2020 and 2024, reported annual revenue grew from $109K to $121K (+10%), with total assets most recently reported at $293K.

Interactive year-over-year charts and full filing details available with membership.

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