Mission
To find a cure for epilepsy by promoting and funding patient focused research.
Public Charity
Citizens United for Research in Epilepsy
Citizens United for Research in Epilepsy is a Public Charity headquartered in Chicago, IL. Financial data from the 2025 filing: $5.0M revenue, $5.5M expenses, $10.4M total assets. 153 publicly reported grants to this organization, totaling roughly $9.1M, appear in IRS filings.
EIN: 364253176
Chicago, IL
Fund Raising & Fund Distribution
NTEE: H12
Latest filing: 2025
Total Revenue$5.0M
Total Expenses$5.5M
Total Assets$10.4M
Grant Records153
Funding Total$9.1M
Filing Years2021–2025
Where $100 goes at Citizens United for Research in Epilepsy
How Citizens United for Research in Epilepsy divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$84
Programs
the work itself
$6
Management
running the organization
$10
Fundraising
raising the next dollar
Inside the $84 for programs
$65
Since its inception in 1998, CURE Epilepsy has raised more than 100 million to fund epilepsy research and other initiatives that will lead the way to cures for…
$19
CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted…
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
SUPPORT
$101,308
Research
$30,000
GENERAL SUPPORT
$9,781
HUMAN SERVICES
$228,250
For grant recipient's exempt purposes
$169,492
Showing up to 5 of 153 total records — full history available with membership.
Officers & Directors
Director of Development
Alysha Biehl
Director of Major Gifts
Angela Mota
CEO
Beth Dean
Director
Carrie Garman
Director of Marketing and Communications
Dana Vielmetti
Director
David Reifman
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $5.0M | $5.5M | $10.4M |
| 2024 | $6.1M | $6.2M | $10.7M |
| 2023 | $6.2M | $6.0M | $10.6M |
| 2022 | $6.2M | $5.8M | $10.2M |
| 2021 | $6.0M | $5.8M | $10.5M |
Between 2021 and 2025, reported annual revenue declined from $6.0M to $5.0M (-17%), with total assets most recently reported at $10.4M.
Interactive year-over-year charts and full filing details available with membership.