Public Charity

CYSTINOSIS RESEARCH FOUNDATION

CYSTINOSIS RESEARCH FOUNDATION, of IRVINE, CA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $3.2M in revenue, $3.4M in expenses, $10.0M in total assets. 61 publicly reported grants to this organization, totaling roughly $4.5M, appear in IRS filings.

EIN: 320067668 IRVINE, CA Latest filing: 2025
Total Revenue$3.2M
Total Expenses$3.4M
Total Assets$10.0M
Grant Records61
Funding Total$4.5M
Filing Years2021–2025

Mission

CRF is committed to finding a cure through an aggressively funded research agenda. CRF awards research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new, cutting-edge research projects. CRF is dedicated to improving the quality of life for cystinosis patients and to finding better treatments, including a cure, for our adults and children living with cystinosis.

Officers & Directors

Trustee Angela Kirchoff
Trustee Barbara Kulyk
Trustee Brian Sturgis
Trustee Bruce Crair
Trustee Clay Emerson Phd Pe Cfm
Trustee David W Mossman

Officer compensation and complete director data available with membership.

Top Grant Purposes

HEALTH
$1,346,200 18 grants
HEALTH & WELLNESS
$1,196,000 4 grants
RESEARCH
$578,000 4 grants
FOR RECIPIENT'S EXEMPT PURPOSE
$259,500 2 grants
CULTURE & ARTS
$208,200 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $3.2M $3.4M $10.0M
2024 $3.2M $4.2M $10.4M
2023 $3.2M $2.9M $10.3M
2022 $3.6M $3.1M $10.2M
2021 $3.8M $3.5M $10.3M

Between 2021 and 2025, reported annual revenue declined from $3.8M to $3.2M (-17%), with total assets most recently reported at $10.0M.

Interactive year-over-year charts and full filing details available with membership.

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