Public Charity

KLEINE-LEVIN SYNDROME FOUNDATION INC

KLEINE-LEVIN SYNDROME FOUNDATION INC is a nonprofit organization categorized as Public Charity based in SAN JOSE, CA. Its most recent IRS filing (2024) reports revenue of $30K, expenses of $60K, total assets of $421K. Imperigo tracks 22 reported grant relationships connected to this organization totaling approximately $216K.

EIN: 311685893 SAN JOSE, CA Specifically Named Diseases Research NTEE: H80 Latest filing: 2024
Total Revenue$30K
Total Expenses$60K
Total Assets$421K
Grant Records22
Funding Total$216K
Filing Years2020–2024

Mission

RESEARCH EDUCATION AND PATIENT AND FAMILY OUTREACH

Where $100 goes at Kleine-Levin Syndrome Foundation Inc

How Kleine-Levin Syndrome Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$100 Programs the work itself
<$1 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $100 for programs

$50
Research education patient and family outreach
50% of program spending
$50
Research education patient and family outreach
About 50% (cost not reported)
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Sample Grants Received

2024
FOR RECIPIENT'S EXEMPT PURPOSE
$10,000
2023
FOR RECIPIENT'S EXEMPT PURPOSE
$10,000
2022
FOR RECIPIENT'S EXEMPT PURPOSE
$10,540
2021
For grant recipient's exempt purposes
$10,200
2021
For grant recipient's exempt purposes
$10,200

Showing up to 5 of 22 total records — full history available with membership.

Officers & Directors

DIRECTOR Dani Farber
TREASURER Richard B Maier
PRESIDENT Stephen T Maier

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$185,777 19 grants
Health & Medicine
$30,000 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $30K $60K $421K
2023 $62K $44K $447K
2022 $87K $38K $429K
2021 $107K $71K $380K
2020 $60K $36K $336K

Between 2020 and 2024, reported annual revenue declined from $60K to $30K (-49%), with total assets most recently reported at $421K.

Interactive year-over-year charts and full filing details available with membership.

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