Mission
EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZAION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH.
Public Charity
EB RESEARCH PARTNERSHIP INC
EB RESEARCH PARTNERSHIP INC, of NEW YORK, NY, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $5.5M in revenue, $7.2M in expenses, $22.9M in total assets. 100 publicly reported grants to this organization, totaling roughly $7.0M, appear in IRS filings.
EIN: 272417202
NEW YORK, NY
Latest filing: 2024
Total Revenue$5.5M
Total Expenses$7.2M
Total Assets$22.9M
Grant Records100
Funding Total$7.0M
Filing Years2019–2024
Sample Grants Received
For grant recipient's exempt purposes
$1,356,030
GENERAL SUPPORT
$470,553
CULTURE & ARTS
$123,000
GENERAL SUPPORT
$100,000
$73,400
Showing up to 5 of 100 total records — full history available with membership.
Officers & Directors
COMMUNICATIONS & OPERATIONS DIRECTOR
Allison Mcgettigan
VICE CHAIRMAN
Ari Deshe
DIRECTOR
Chad Ceretto
DIRECTOR
Corey Gray
DIRECTOR
Daniel Deshe
DIRECTOR
Ed Vedder
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $5.5M | $7.2M | $22.9M |
| 2023 | $7.4M | $7.7M | $24.7M |
| 2022 | $6.5M | $7.0M | $22.6M |
| 2020 | $4.8M | $4.6M | $16.4M |
| 2019 | $8.1M | $3.8M | $16.1M |
Between 2019 and 2024, reported annual revenue declined from $8.1M to $5.5M (-32%), with total assets most recently reported at $22.9M.
Interactive year-over-year charts and full filing details available with membership.