Public Charity

FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE

Based in NEW YORK, NY, FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE operates as a Public Charity. The organization reported $194K in revenue, $328K in expenses, $1.9M in total assets for fiscal year 2025. Imperigo tracks 11 reported grant relationships connected to this organization totaling approximately $2.1M.

EIN: 134166186 NEW YORK, NY Specifically Named Diseases NTEE: G80 Latest filing: 2025
Total Revenue$194K
Total Expenses$328K
Total Assets$1.9M
Grant Records11
Funding Total$2.1M
Filing Years2019–2025

Mission

FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE, INC. IS AN ORGANIZATION COMMITTED TO ENHANCING THE QUALITY OF LIFE OF CYSTIC FIBROSIS PATIENTS WHILE THEY AWAIT A CURE. THE ORGANIZATION ACCOMPLISHES THIS BY SUPPORTING AND ENDEAVORING TO IMPROVE THE SPECIAL PROGRAMS AVAILABLE FOR PATIENTS.

Where $100 goes at Families and Friends Supporting Cystic Fibrosis Care

How Families and Friends Supporting Cystic Fibrosis Care divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.

$80 Programs the work itself
$20 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $80 for programs

$80
The organization provides grants to operate a cystic fibrosis center for the purpose of enhancing the quality of life of patients
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Sample Grants Received

2023
For grant recipient's exempt purposes
$200,200
2022
For grant recipient's exempt purposes
$666,000
2021
For grant recipient's exempt purposes
$304,000
2021
For grant recipient's exempt purposes
$304,000

Showing up to 5 of 11 total records — full history available with membership.

Officers & Directors

DIRECTOR David Shepherd
PRESIDENT Gwen M Engelhard Dds
CHIEF FINANCIAL OFFICER Jill Dalton
PRESIDENT EMERITUS/SECRETA John Z Jacoby
DIRECTOR Judy Nance
DIRECTOR Kaitlyn Cheney

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$2,048,800 8 grants
Health & Medicine
$21,450 3 grants

Financial Trends

Year Revenue Expenses Assets
2025 $194K $328K $1.9M
2024 $498K $355K $2.1M
2023 $818K $755K $1.9M
2020 $396K $257K $1.6M
2019 $471K $392K $1.3M

Between 2019 and 2025, reported annual revenue declined from $471K to $194K (-59%), with total assets most recently reported at $1.9M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE

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