Mission
TO RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON GENETIC CAUSE OF COMBINED DEAFNESS AND BLINDNESS, WHILE PROVIDING INFORMATION AND SUPPORT TO INDIVIDUALS WITH USHER SYNDROME.
Public Charity
COALITION FOR USHER SYNDROME RESEARCH
COALITION FOR USHER SYNDROME RESEARCH, of WESTFORD, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $417K in revenue, $360K in expenses, $239K in total assets. 19 publicly reported grants to this organization, totaling roughly $275K, appear in IRS filings.
EIN: 264560897
WESTFORD, MA
Patient & Family Support
NTEE: E86
Latest filing: 2025
Total Revenue$417K
Total Expenses$360K
Total Assets$239K
Grant Records19
Funding Total$275K
Filing Years2020–2025
Sample Grants Received
Research Usher Syndrome
$15,000
RESEARCH OR PROFESSIONAL SOCIETIES
$50,000
Research Usher Syndrome
$20,000
$18,950
GENERAL SUPPORT
$11,869
Showing up to 5 of 19 total records — full history available with membership.
Officers & Directors
DIRECTOR
Danay Trest
DIRECTOR
Jennifer J Lentz Phd
DIRECTOR
Kathy Anamisis
EXECUTIVE DI
Krista Vasi
DIRECTOR
Monte Westerfield Phd
DIRECTOR
Nancy Corderman
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $417K | $360K | $239K |
| 2024 | $378K | $437K | $188K |
| 2023 | $250K | $285K | $240K |
| 2022 | $503K | $416K | $287K |
| 2020 | $237K | $173K | $199K |
Between 2020 and 2025, reported annual revenue grew from $237K to $417K (+76%), with total assets most recently reported at $239K.
Interactive year-over-year charts and full filing details available with membership.