Mission
To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals and families with Usher syndrome.
Public Charity
Coalition For Usher Syndrome Research
Coalition For Usher Syndrome Research, of Westford, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $378K in revenue, $437K in expenses, $188K in total assets. 19 publicly reported grants to this organization, totaling roughly $275K, appear in IRS filings.
EIN: 264560897
Westford, MA
Latest filing: 2024
Total Revenue$378K
Total Expenses$437K
Total Assets$188K
Grant Records19
Funding Total$275K
Filing Years2019–2024
Sample Grants Received
Research Usher Syndrome
$15,000
RESEARCH OR PROFESSIONAL SOCIETIES
$50,000
Research Usher Syndrome
$20,000
$18,950
GENERAL SUPPORT
$11,869
Showing up to 5 of 19 total records — full history available with membership.
Officers & Directors
Director
Danay Trest
Director
David Alexander
Director
Eric Wagner Phd
Director
Jennifer J Lentz Phd
Director
Kathy Anamisis
Executive Director
Krista Vasi
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $378K | $437K | $188K |
| 2023 | $250K | $285K | $240K |
| 2022 | $503K | $416K | $287K |
| 2020 | $237K | $173K | $199K |
| 2019 | $280K | $270K | $136K |
Between 2019 and 2024, reported annual revenue grew from $280K to $378K (+35%), with total assets most recently reported at $188K.
Interactive year-over-year charts and full filing details available with membership.