Public Charity

Usher Syndrome Society Inc

Based in Needham, MA, Usher Syndrome Society Inc operates as a Public Charity. The organization reported $1.3M in revenue, $1.0M in expenses, $2.3M in total assets for fiscal year 2025. Imperigo tracks 6 reported grant relationships connected to this organization totaling approximately $113K.

EIN: 261577154 Needham, MA Latest filing: 2025
Total Revenue$1.3M
Total Expenses$1.0M
Total Assets$2.3M
Grant Records6
Funding Total$113K
Filing Years2021–2025

Mission

To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.

Where $100 goes at Usher Syndrome Society Inc

How Usher Syndrome Society Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$85 Programs the work itself
$3 Management running the organization
$12 Fundraising raising the next dollar

Inside the $85 for programs

$85
In 2025, the Usher Syndrome Society continued its award-winning Every Second Counts campaign with a new commercial bringing total impressions to more than 500 million
All program spending · Reported in the filing: 200 guests
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director Alan Pinto
Vice President David Corderman
Director Hannah Corderman
President Nancy Corderman
Director Peggy Borst
Director Rebecca Alexander

Officer compensation and complete director data available with membership.

Top Grant Purposes

Research & Policy
$80,000 2 grants
General Support
$23,138 2 grants
Unspecified
$10,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $1.3M $1.0M $2.3M
2024 $1.5M $451K $2.0M
2023 $500K $448K $681K
2022 $473K $410K $629K
2021 $340K $134K $566K

Between 2021 and 2025, reported annual revenue grew from $340K to $1.3M (+280%), with total assets most recently reported at $2.3M.

Interactive year-over-year charts and full filing details available with membership.

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