Public Charity

WORLD FEDERATION OF HEMOPHILIA USA

WORLD FEDERATION OF HEMOPHILIA USA is a nonprofit organization categorized as Public Charity based in ALBANY, NY. Its most recent IRS filing (2024) reports revenue of $1.1B, expenses of $1.2B, total assets of $377.6M. Imperigo tracks 31 reported grant relationships connected to this organization totaling approximately $3.7M.

EIN: 161513923 ALBANY, NY Birth Defects & Genetic Diseases NTEE: G20 Latest filing: 2024
Total Revenue$1.1B
Total Expenses$1.2B
Total Assets$377.6M
Grant Records31
Funding Total$3.7M
Filing Years2020–2024

Mission

The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia WFH within the United States to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All.

Where $100 goes at World Federation of Hemophilia USA

How World Federation of Hemophilia USA divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.

$100 Programs the work itself
<$1 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $100 for programs

$100
The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in…
100% of program spending
<$1
The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to…
0% of program spending
<$1
The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs
0% of program spending

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Sample Grants Received

2024
For the care and treatment of people with bleeding disorders
$550,000
2024
For grant recipient's exempt purposes
$128,100
$100,000
2024
WOMEN & GIRLS WITH BLEEDING DISORDERS, AND CHAPTERS CHALLENGE GRANTS
$90,000

Showing up to 5 of 31 total records — full history available with membership.

Officers & Directors

Secretary Exec Director Alain Baumann
BoD member Amy Dunn
BoD member Dawn Rotellini
BoD member Eric Stolte
BoD member Frank Schnabel Iv
BoD member Glenn Pierce

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$679,000 6 grants
General Support
$605,729 13 grants
Research & Policy
$345,000 4 grants
Human & Social Services
$33,000 1 grant
Unspecified
$2,047,000 7 grants

Financial Trends

Year Revenue Expenses Assets
2024 $1.1B $1.2B $377.6M
2023 $1.1B $1.1B $437.0M
2022 $684.6M $684.5M $1.9M
2021 $823.0M $822.8M $2.0M
2020 $398.5M $398.3M $1.4M

Between 2020 and 2024, reported annual revenue grew from $398.5M to $1.1B (+175%), with total assets most recently reported at $377.6M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for WORLD FEDERATION OF HEMOPHILIA USA

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