Public Charity

NATIONAL BLEEDING DISORDERS FOUNDATION

NATIONAL BLEEDING DISORDERS FOUNDATION is a Public Charity headquartered in NEW YORK, NY. Financial data from the 2024 filing: $16.6M revenue, $19.6M expenses, $30.8M total assets. 136 publicly reported grants to this organization, totaling roughly $7.6M, appear in IRS filings.

EIN: 135641857 NEW YORK, NY Latest filing: 2024
Total Revenue$16.6M
Total Expenses$19.6M
Total Assets$30.8M
Grant Records136
Funding Total$7.6M
Filing Years2020–2024

Mission

THE NATIONAL BLEEDING DISORDERS FOUNDATION (FORMERLY THE NATIONAL HEMOPHILIA FOUNDATION) IS DEDICATED TO FINDING CURES FOR INHERITABLE BLOOD AND BLEEDING DISORDERS AND TO ADDRESSING AND PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH RESEARCH, EDUCATION, AND ADVOCACY ENABLING PEOPLE AND FAMILIES TO THRIVE.

Where $100 goes at National Bleeding Disorders Foundation

How National Bleeding Disorders Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$75 Programs the work itself
$20 Management running the organization
$5 Fundraising raising the next dollar

Inside the $75 for programs

$28
Health education and trainingnbdf expanded its health coaching project, own your path, for men and women with hemophilia or von willebrand disease (vwd)
37% of program spending · Reported in the filing: 2,000 women; 89 workshops; 1,200 participants
$22
Community services nbdf's public policy department works to advocate for policies that promote health, safety, rights and access to care for people with inheritable blood disorders by educating…
29% of program spending
$17
Researchnational research blueprint (nrb)
23% of program spending · Reported in the filing: 1,000 participants

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR James R Christensen
TREASURER Joseph Alioto Md
DIRECTOR Joseph J Helfert Ii
DIRECTOR Kelly Wornall
ACCESS & STRATEGIC INNOVATION Keri Norris Svp Of Health
PRESIDENT & CEO - THRU 3/31/24 Leonard Valentino

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$4,025,104 24 grants
General Support
$1,195,001 27 grants
Education
$328,155 19 grants
Research & Policy
$30,087 2 grants
Unspecified
$1,980,816 63 grants

Financial Trends

Year Revenue Expenses Assets
2024 $16.6M $19.6M $30.8M
2023 $19.0M $23.1M $33.5M
2022 $18.2M $23.1M $37.8M
2021 $26.4M $18.6M $46.8M
2020 $21.5M $19.0M $38.8M

Between 2020 and 2024, reported annual revenue declined from $21.5M to $16.6M (-23%), with total assets most recently reported at $30.8M.

Interactive year-over-year charts and full filing details available with membership.

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