Public Charity

THE JEFFREY MODELL FOUNDATION INC

Based in NEW YORK, NY, THE JEFFREY MODELL FOUNDATION INC operates as a Public Charity. The organization reported $10.2M in revenue, $9.3M in expenses, $46.0M in total assets for fiscal year 2024. Imperigo tracks 11 reported grant relationships connected to this organization totaling approximately $191K.

EIN: 133380237 NEW YORK, NY Latest filing: 2024
Total Revenue$10.2M
Total Expenses$9.3M
Total Assets$46.0M
Grant Records11
Funding Total$191K
Filing Years2019–2024

Mission

The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. The Foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.

Where $100 goes at The Jeffrey Modell Foundation Inc

How The Jeffrey Modell Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$92 Programs the work itself
$5 Management running the organization
$3 Fundraising raising the next dollar

Inside the $92 for programs

$86
The organization conducted public service advertising campaigns directed to the general public to create public awareness, as well as to educate both treating physicians and the general public…
93% of program spending
$6
Basic and clinical research support at numerous educational institutions and hospitals throughout the united states and world-wide as reported in accompanying schedule f and schedule I
7% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director Allyson Alan Galishoff
Director Bettina Emden
Director Brenda Gary Lavigna
Director Carol James Randel
CHIEF FINANCIAL OFFICER Christopher Sims
Director Debbe Longo Strout

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$102,897 8 grants
Research & Policy
$57,500 1 grant
Fundraising & Sponsorship
$25,000 1 grant
Unspecified
$5,125 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $10.2M $9.3M $46.0M
2023 $9.6M $7.4M $42.9M
2022 $8.8M $5.9M $38.6M
2020 $10.1M $4.8M $34.9M
2019 $9.3M $6.5M $29.6M

Between 2019 and 2024, reported annual revenue grew from $9.3M to $10.2M (+10%), with total assets most recently reported at $46.0M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for THE JEFFREY MODELL FOUNDATION INC

Complete financials, all 11 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 880,000+ organizations.

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