Public Charity

IMMUNE DEFICIENCY FOUNDATION

IMMUNE DEFICIENCY FOUNDATION, of HANOVER, MD, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $11.4M in revenue, $8.4M in expenses, $23.3M in total assets. 47 publicly reported grants to this organization, totaling roughly $952K, appear in IRS filings.

EIN: 521214782 HANOVER, MD Medical Research NTEE: H Latest filing: 2025
Total Revenue$11.4M
Total Expenses$8.4M
Total Assets$23.3M
Grant Records47
Funding Total$952K
Filing Years2021–2025

Mission

THE IMMUNE DEFICIENCY FOUNDATION IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE FOR EVERY PERSON AFFECTED BY PRIMARY IMMUNODEFICIENCY. WE FOSTER A COMMUNITY THAT IS CONNECTED, ENGAGED, AND EMPOWERED THROUGH ADVOCACY, EDUCATION, AND RESEARCH.

Where $100 goes at Immune Deficiency Foundation

How Immune Deficiency Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$76 Programs the work itself
$14 Management running the organization
$10 Fundraising raising the next dollar

Inside the $76 for programs

$38
Immune Deficiency Foundation provided educational programs and services for patients and families living with primary immunodeficiencies (pi)
50% of program spending · Reported in the filing: 34,030 individuals; 14,000 people
$20
The pi community relies on individual assistance including but not limited to answering insurance questions, locating a specialist in their area, finding treatment information, and learning more about…
27% of program spending · Reported in the filing: 2,200 individuals
$18
To improve the diagnosis, treatment, and quality of life of those affected by pi, there are several initiatives to provide resources directly to the medical community, including attending…
23% of program spending
Share on LinkedIn Share on Facebook
Add this to your website

Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

TRUSTEE Adrian Mollo
CHIEF DEV. O Aimee Simpson
DIR OF EDU & Alissa Creamer
TRUSTEE Andy Robins
CTO Brian Lloyd
TRUSTEE Charlene Grabowski

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$733,762 30 grants
Health & Medicine
$108,895 10 grants
Research & Policy
$91,933 3 grants
Unspecified
$17,185 3 grants

Financial Trends

Year Revenue Expenses Assets
2025 $11.4M $8.4M $23.3M
2024 $10.1M $9.6M $18.8M
2023 $9.0M $7.4M $17.4M
2022 $8.9M $7.9M $14.6M
2021 $9.9M $8.0M $14.3M

Between 2021 and 2025, reported annual revenue grew from $9.9M to $11.4M (+15%), with total assets most recently reported at $23.3M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for IMMUNE DEFICIENCY FOUNDATION

Complete financials, all 47 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 880,000+ organizations.

Full Financial History Complete Grant Activity Officer Compensation Year-over-Year Charts Geographic Grant Map Data Exports
7-day free trial Cancel any time