Mission
NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
Public Charity
NATIONAL ORGANIZATION FOR RARE DISORDERS INC
NATIONAL ORGANIZATION FOR RARE DISORDERS INC is a nonprofit organization categorized as Public Charity based in QUINCY, MA. Its most recent IRS filing (2024) reports revenue of $50.7M, expenses of $43.0M, total assets of $72.3M. Imperigo tracks 94 reported grant relationships connected to this organization totaling approximately $13.1M.
EIN: 133223946
QUINCY, MA
Latest filing: 2024
Total Revenue$50.7M
Total Expenses$43.0M
Total Assets$72.3M
Grant Records94
Funding Total$13.1M
Filing Years2020–2024
Sample Grants Received
TSC TRAVEL AND LODGING ASSISTANCE PROGRAM
$150,000
SUBAWARD
$1,319,385
TSC TRAVEL AND LODGING ASSISTANCE PROGRAM
$175,000
$114,676
For grant recipient's exempt purposes
$82,399
Showing up to 5 of 94 total records — full history available with membership.
Officers & Directors
VP OF DEVELOPMENT
Alexandra Moore
DIRECTOR
Dennis Jackman
CHIEF MEDICAL & SCIENTIFIC OFFICER
Edward Neilan
VP PATIENT SERVICES
Jill Pollander
SECRETARY
Jim Palma
CHAIR
Kathleen Holcombe
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $50.7M | $43.0M | $72.3M |
| 2023 | $66.4M | $52.8M | $65.2M |
| 2022 | $59.9M | $48.4M | $49.5M |
| 2021 | $43.2M | $57.7M | $37.9M |
| 2020 | $42.8M | $52.7M | $52.8M |
Between 2020 and 2024, reported annual revenue grew from $42.8M to $50.7M (+18%), with total assets most recently reported at $72.3M.
Interactive year-over-year charts and full filing details available with membership.