Mission
TO IMPROVE QUALITY OF LIFE FOR EVERYONE AFFECTED BY TUBEROUS SCLEROSIS COMPLEX BY CATALYZING NEW TREATMENTS, DRIVING RESEARCH TOWARD A CURE AND EXPANDING ACCESS TO LIFELONG SUPPORT.
Public Charity
NATIONAL TUBEROUS SCLEROSIS ASSOCIATION
NATIONAL TUBEROUS SCLEROSIS ASSOCIATION is a Public Charity headquartered in SILVER SPRING, MD. Financial data from the 2025 filing: $9.8M revenue, $9.1M expenses, $18.0M total assets. 112 publicly reported grants to this organization, totaling roughly $8.2M, appear in IRS filings.
EIN: 953018799
SILVER SPRING, MD
Professional Societies & Associations
NTEE: G03
Latest filing: 2025
Total Revenue$9.8M
Total Expenses$9.1M
Total Assets$18.0M
Grant Records112
Funding Total$8.2M
Filing Years2021–2025
Where $100 goes at National Tuberous Sclerosis Association
How National Tuberous Sclerosis Association divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$78
Programs
the work itself
$8
Management
running the organization
$14
Fundraising
raising the next dollar
Inside the $78 for programs
$60
Research program stimulates and supports basic, translational, and clinical research on the various manifestations of tuberous sclerosis complex (tsc) to further the development of clinical therapies and, ultimately…
$10
Support services is dedicated to supporting individuals and families affected by tsc through outreach programs, support services, improved medical access, and educational resources
$5
Public health education increases awareness of tsc throughout the general public to broaden the scope of support and understanding beyond tsc individuals and their families; these efforts also…
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
PROGRAM SUPPORT
$246,000
MEDICAL
$45,000
Research
$43,290
GENERAL SUPPORT
$20,984
For grant recipient's exempt purposes
$1,261,194
Showing up to 5 of 112 total records — full history available with membership.
Officers & Directors
DIRECTOR
Andrew Duffy
DIRECTOR
Andrew Sperling
DIRECTOR
Angelique Bordey
DIRECTOR
Bill Joseph
VICE CHAIR
Brittany Smith
DIRECTOR
Chip Burkhalter
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $9.8M | $9.1M | $18.0M |
| 2024 | $10.0M | $8.7M | $17.3M |
| 2023 | $10.0M | $8.5M | $16.1M |
| 2022 | $8.9M | $8.1M | $14.8M |
| 2021 | $9.0M | $6.9M | $14.0M |
Between 2021 and 2025, reported annual revenue grew from $9.0M to $9.8M (+9%), with total assets most recently reported at $18.0M.
Interactive year-over-year charts and full filing details available with membership.