Mission
NTSAD LEADS THE WORLDWIDE FIGHT TO TREAT AND CURE TAY-SACHS, CANAVAN, GM1, AND SANDHOFF DISEASES BY DRIVING RESEARCH, FORGING COLLABORATIION, AND FOSTERING COMMUNITY, SUPPORTING FAMILIES IS THE CENTER OF EVERYTHING WE DO.
Public Charity
NATIONAL TAY-SACHS & ALLIED DISEASES ASS
NATIONAL TAY-SACHS & ALLIED DISEASES ASS, of BRIGHTON, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $1.4M in revenue, $1.4M in expenses, $2.8M in total assets. 56 publicly reported grants to this organization, totaling roughly $1.1M, appear in IRS filings.
EIN: 131912877
BRIGHTON, MA
Voluntary Health Associations & Medical Disciplines
NTEE: G
Latest filing: 2025
Total Revenue$1.4M
Total Expenses$1.4M
Total Assets$2.8M
Grant Records56
Funding Total$1.1M
Filing Years2020–2025
Where $100 goes at National Tay-Sachs & Allied Diseases Ass
How National Tay-Sachs & Allied Diseases Ass divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$78
Programs
the work itself
$8
Management
running the organization
$14
Fundraising
raising the next dollar
Inside the $78 for programs
$46
Research
$27
Family services
$5
Education
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
For grant recipient's exempt purposes
$82,180
$50,000
GENERAL SUPPORT
$15,000
FOR RECIPIENT'S EXEMPT PURPOSE
$14,000
DISEASE/DISORDER
$12,000
Showing up to 5 of 56 total records — full history available with membership.
Officers & Directors
DIRECTOR
Abby Rogers
DIRECTOR
Amber Franzen
DIRECTOR
Bonnie Davis
DIRECTOR
Carla Steckman
DIRECTOR
Dawn Laney
DIRECTOR
Deborah Sanders
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $1.4M | $1.4M | $2.8M |
| 2024 | $1.4M | $1.3M | $2.9M |
| 2023 | $1.2M | $1.5M | $2.9M |
| 2021 | $1.3M | $748K | $2.7M |
| 2020 | $1.2M | $677K | $2.2M |
Between 2020 and 2025, reported annual revenue grew from $1.2M to $1.4M (+20%), with total assets most recently reported at $2.8M.
Interactive year-over-year charts and full filing details available with membership.